January 2017

Tips and Tricks for Traveling with Chronic Illness 

January 28, 2017 Uncategorized

Traveling is hard no matter. Making sure you get to the airport and your gate on time. Plus, all the hard work you have to put in before getting to the airport. The planning, the packing! Not just clothes but medication. Where do you put those? How do you travel with them safely?  Then you add a chronic illness and chronic pain on top of everything and traveling seems impossible. There are ways and “tricks of the trade” to makeRead More

My Story/Self-Advocacy

January 26, 2017 Diagnosis, Uncategorized

Self-advocacy is defined as the action of representing oneself or one’s views or interests.  Advocating for ones-self becomes imparitive when you are diagnosed with any type of Chronic Illness. It’s a dog eat dog world out there and sadly no one but you can ever truly stand up for what you believe in!! And to get the proper care and treatment for your condition.  It’s just been in the last couple of years I have learned just how important thisRead More

To Cope or Not to Cope

January 26, 2017 Exercise

We all have family, we can’t pick them. We are stuck with them. Sadly, though they are usually the ones who hurt us the most. Whether it be by not being supportive or by making snide comments about our illness. When they make rude comments about us being lazy or us not doing anything to improve our health, it is very hurtful and hard to take. That being said families of people with autoimmune issues also have a lot toRead More

Ways to Stay Healthy During the Cold and Flu Season

The cold and flu season can wreak havoc on those of us who are immunocompromised and are taking immunosuppressants. It seems like everywhere you go there are people hacking and coughing, sneezing and blowing their nose. And of course they are NEVER doing so in a way that could protect others from getting their germs. So here are a few questions to think about. Why do immunocompromised patients get more infections than others?  Why are infections often times more seriousRead More

A Day in the Life Getting Benlysta 

My Experience  Yesterday, I finally got my Benlysta infusion. I was 4 weeks late due to surgery, illness and then change in insurance. That was a LONG four weeks. I could really tell I was late. I’ve been hurting more and so dang tired. But then the days following are pretty miserable. However, I’ll take those two yucky days to get three good weeks. I am so grateful that I qualify for this medication and that it helps me!  EverythingRead More

Friendships…. And Chronic Illness

If you suffer from ANY kind of Chronic Illness you know how hard it can be to maintain your friendships!! They just don’t understand what it’s like to have an illness that at times dictates your life. Most won’t understand that you don’t like to cancel plans and stay home. but sometimes it’s necessary. Many will think that you are just being flakey, lazy or just don’t want to leave your house. When in most situations that is far from theRead More

WHY EXERCISE DOESN’T HAVE TO BE A DIRTY WORD

When you have a chronic illness and/or chronic pain the last thing you want to do is exercise.  But it’s one of the first thing that you will hear from your doctor as a way to make you feel better.  That often leaves you frustrated and annoyed, saying “I hurt too much and am way to fatigued to ever think about exercise.” However research shows that it does have benefits for the chronically ill. That leaves you asking “What kindRead More

How do you deal with Depression?

January 13, 2017 depression, Pain

Depression is something that just comes along with having a chronic illness. And the winter season seems to make it worse because you are not able to go out doors and keep up with the things you like to do. So what do you do to deal with it? What tips do you have for dealing with depression and making your life a little easier this time of year?  A lot of research has been done on his area andRead More

What Can You Do to Improve Your Sleep?

January 11, 2017 INFORMATIONAL POSTS, Pain, Sleep

Before sitting down to write this I did quite a bit of research to find the best recommendations to improves ones sleep. Things that we all haven’t heard multiple times The best recommdations I found came from Spark People. I will provide the link to the article at the end of this post.  So here we go…. One step closer to better sleep. When you live with chronic pain, headaches, an autoimmune disease or an old nagging injury from theRead More

Migraine Info

January 11, 2017 Migraines

15 Things People Who Don’t Get Migraines Don’t “Get” About Migraines Paula K. Dumas 0 CommentMarch 14, 2016 If you live or work with someone like me who has migraines for long periods of time, you must have been on the receiving end of a range of expressions and actions that may have left you wondering: Are they faking it? What did I do to offend them? Am I boring them? Nope. Probably nothing. And probably not. Trouble is, it’sRead More

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