March 2018

Don’t Leave Me Out

If I had a dime for every time I’ve been told by a friend or family member that they didn’t want to tell me something or invite me to something because I’m sick, I would be RICH!! I’ve been left out of all kinds of news and events over the last few years! News about a new baby or a new job, or that someone lost a job or was struggling with something, or being left out of a funRead More

My Journey Is Not Yours to Share!

March 29, 2018 Awareness, my journey

Every single one of us has our own story and our own journey. No two peoples journey will ever be the same. And we all feel differently about how and when we share our journey with new people. It can be a difficult decision as to when you decide to open up to new people about your chronic illness or condition. You don’t want to lead with it because the illness or condition does not totally define you, but itRead More

The Spoon Theory, How Spoonies Get Through a Day

When you are sick and really feeling terrible, there is nothing that can be more irritating than when someone says to you, “At least you don’t loo sick!” While they may not mean this as anything but a compliment. In general it is NOT how most with an invisible (chronic) illness will take it. To hear you don’t look sick when you have an illness where your body is attacking itself on the inside but can’t be seen on theRead More

Exercising with Chronic Illness

Exercise is not something I have talked a lot about in previous posts. Because it’s not something I have been doing. And it’s not something I enjoy, or to be honest know that much about. But honestly it’s time! The cardiologist cleared my heart and we are looking at my lungs. But recently a doctor that I love and respect very much reminded me that the shortness of breath and high heart rate I have been experiencing could be somethingRead More

What’s In My Hospital Bag- Spoonie Edition

March 15, 2018 "Me" time, hospital, Spoonies

Sadly over the last three years I have spent many days and nights in the hospital. I even took a trip to Mayo for a week and have had a couple overnight trips for treatment. That being said I have what I need in my bag for the hospital down to a science. In fact when I get home from the hospital, I wash the dirty things in the bag and repack it. That way it’s always ready and IRead More

The Reason Behind the Blog.

January 2017 I was at an all time low. I had left the career that I loved so much as a nurse behind, to focus solely on me and my health. Something I’ve never been good at. Historically I always put myself behind others. Making sure everyone else has their needs met before my own. I don’t know why, but I do. At that point I needed something, something I could throw myself into. Something to focus my time on.Read More

Dear World….

Hello world! This one is for YOU!! No matter how hard we try there are always going to be some level of judgement within. But most of us keep that judgement to ourselves, and don’t stare people down or make comments when we think they shouldn’t be using that wheelchair, or parking in a handicapped spot or even just wearing a mask out in public. That being said many people don’t keep those judgments to them self and they makeRead More

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