Lupus Paychosis/ Neuropsychiatric Lupus 

Lupus psychosis or  Neuropsychiatric Lupus sounds pretty scary right? Well it is. It may also sound pretty far fetched…. That it is not!!!!It is a truly scary condition that someone with lupus can deal with, but others who don’t have lupus might have trouble understanding.  So what exactly IS LUPUS PSYCHOSIS??? Or Neuropsychiatric Lupus? The American College of Rheumatology (ACR) has identified “19 different ways that lupus can affect nervous system, including the brain. This complication of lupus is knownRead More

What Lupus Awareness Month Means to Me

May 1, 2017 Uncategorized

Today starts 31 days of Lupus Awareness. And being that Lupus is my main condition I am going to be Writing a lot on Lupus, the chatectistics, the signs, what’s it’s like as a person to have the disease, the treatments etc…  This is an important month to me. Not only is it the month of my birth, but the month that focuses on the disease that has forever changed my life.   Lupus was to me, like many, aRead More

Rantings of the ER/Being Admitted to the Hospital

April 30, 2017 Uncategorized

Time for another session of things I’ve learned. This time sadly, are things I’ve learned, or I should say things I was reminded of, while being in the Emergency Room and being admitted to the hospital. It’s amazing to me still how things haven’t changed in the last several years in the way they should have. Might as well not beat around the bush any longer. This won’t be long. But just short and too the point. So lets justRead More

The Basics of Infertility! 

Infertility….. I am sure that you all know someone who has been affected or you have been affected by infertility. April 22 Through April 28, 2018 is Infertility Awareness Week.  To give you an idea of just how many are affected, here are some staggering statistics regarding infertility. 7.4 million women, or 11.9% of women, have ever received any infertility services in their lifetime. (2006-2010 National Survey of Family Growth, CDC) 1 in 8 couples (or 12% of married women)Read More

What is Sjogrens?

Sjogrens…… How many of you know what that word means or is? According to Mayo Clinic, Sjogren’s (SHOW-grins) syndrome is a disorder of the immune system which is identified the two most common symptoms: dry eyes and a dry mouth. Sjogren’s syndrome is often found in those with other immune system disorders, such as rheumatoid arthritis and lupus. In this blog post we will look at what Sjogrens is, how many are affected, the symptoms and how it is treated.Read More

Things I’ve Learned Since Becoming a Spoonie

April 24, 2017 Uncategorized

Five years ago I started my journey of becoming a spoonie. In those five years I have learned many important life lessons. And along that journey I’ve learned many hard lessons, lessons that had I not gotten sick I might have never learned!  So I wanted to share just a few of the most important with you. Many of the things I’ve learned I’m sure many of you can relate to! So let’s just jump on in.  1.  NO ONERead More

Cyclic Vomiting Syndrome 

When you hear CVS what do you think? If you are like most you probably think of the big box pharmacy. And you wouldn’t be alone in this. That’s what most would think. However, if you have CVS or know someone who suffers from it, that is not the first thing that comes to mind. You would probably think of Cyclic Vomiting Syndrome. What is that you ask!? We will discuss that in today’s post. We will look at whatRead More

A Little Inspiration and A Little Truth

April 20, 2017 Uncategorized

CHRONIC ILLNESS SCRIPTURES Psalm 46:1-3 — God is our refuge and strength, a very present help in trouble. Therefore will not we fear, though the earth be removed, and though the mountains be carried into the midst of the sea; though the waters thereof roar and be troubled, though the mountains shake with the swelling thereof. Selah. Isaiah 57:18 — I have seen his ways, and will heal him: I will lead him also, and restore comforts unto him andRead More

Pain Medication…. The Debate

Ma’am I see you have scheduled pain medicine on your list of meds……… Yes, I take them for my PAIN….. What do you need pain medicine for????  Well, let’s see. Could it be the Systemic Lupus? Or Maybe the Endometriosis? Or could it be the interstitial cystitis? Or maybe the chronic migraines or fibromyalgia??????  For some pain medicine is the only way that they can make it through the day. Maybe even the only way they can get out ofRead More

Makeup Haul

April 16, 2017 Uncategorized

Lately I have become a makeup junkie. On a quest to find a good concealer for the redness in my checks (butterfly rash from Lupus) and the bags under my eyes. Also looking for a good foundation with good coverage that doesn’t make me look like I’m wahshed out or like my face is two shades darker than the rest of me.  When you are pale color matching is seriously an issue.  I’ve also been searching for good lipstick thatRead More

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