The Spoon Theory, How Spoonies Get Through a Day

When you are sick and really feeling terrible, there is nothing that can be more irritating than when someone says to you, “At least you don’t loo sick!” While they may not mean this as anything but a compliment. In general it is NOT how most with an invisible (chronic) illness will take it. To hear you don’t look sick when you have an illness where your body is attacking itself on the inside but can’t be seen on theRead More

Exercising with Chronic Illness

Exercise is not something I have talked a lot about in previous posts. Because it’s not something I have been doing. And it’s not something I enjoy, or to be honest know that much about. But honestly it’s time! The cardiologist cleared my heart and we are looking at my lungs. But recently a doctor that I love and respect very much reminded me that the shortness of breath and high heart rate I have been experiencing could be somethingRead More

What’s In My Hospital Bag- Spoonie Edition

March 15, 2018 "Me" time, hospital, Spoonies

Sadly over the last three years I have spent many days and nights in the hospital. I even took a trip to Mayo for a week and have had a couple overnight trips for treatment. That being said I have what I need in my bag for the hospital down to a science. In fact when I get home from the hospital, I wash the dirty things in the bag and repack it. That way it’s always ready and IRead More

The Reason Behind the Blog.

January 2017 I was at an all time low. I had left the career that I loved so much as a nurse behind, to focus solely on me and my health. Something I’ve never been good at. Historically I always put myself behind others. Making sure everyone else has their needs met before my own. I don’t know why, but I do. At that point I needed something, something I could throw myself into. Something to focus my time on.Read More

Dear World….

Hello world! This one is for YOU!! No matter how hard we try there are always going to be some level of judgement within. But most of us keep that judgement to ourselves, and don’t stare people down or make comments when we think they shouldn’t be using that wheelchair, or parking in a handicapped spot or even just wearing a mask out in public. That being said many people don’t keep those judgments to them self and they makeRead More

How I Really Feel About…….. Pain

Pain….. is something I deal with daily. And I am guessing that many of you do as well! It has just become a part of our daily lives and something many of us don’t give a second thought to. And most of us would give anything to have one pain free day where nothing hurt at all without having to take a pill to get that way. That being said it has become a BATTLE for some to actually getRead More

The Things I Wish Someone Would Have Told Me

Even though I’ve been diagnosed with Lupus, Fibromyalgia, and Endometriosis there are still things I come across that I wish someone would have told me about. You all know what I’m talking about, those little “tricks of the trade” that people who have been dealing with that condition for awhile and no one shares with the newbie. So after having a discussion with several people across several different groups, I have complied a list of things by asking others whoRead More

You Behind The Illness (tag)

February 22, 2018 Uncategorized

I was tagged by Michelle Munt from JumbledBrain.com. Those of us who are chronic illness bloggers are always focused on spreading awareness and understanding, we sometimes forget to show who we are, not just “what” we are! So this tag is to help us share a bit more about our personalities and give you a better idea of who is behind the blog!! You can read Michelle’s Behind The Illness Post here. I have tagged a few other bloggers onRead More

A New Way to Look At Feb 14th…..Aka National Donor Day

We all know February 14th to be Valentines Day, the day of love and the day to celebrate the ones we love.  But to many it is a day to celebrate something much different. February 14th is not only a day to show your loved ones how much you love them, it is also a day to talk about organ donation.  February 14th is National Organ Donor Day. Which for some is different way to share love. That being said,Read More

Finding Support

February 7, 2018 Uncategorized

Support is essential when you are living with some kind of chronic illness. When your life changes and your health declines you feel more and more alone. At first your family and friends can’t seem to understand what you are dealing with. They try but in a lot of cases they really can’t understand what we deal with daily unless they live it. Sadly, as your health declines you often lose much of the support you did have, because peopleRead More

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