Diagnosis

Depression, My Story. By Kayla Aiken

Depression has many faces, and can look many different ways! It’s not always the person that we picture in our minds, or saw on TV. Someone who is so down that they can’t get out of bed or complete their daily tasks. It can look like your best friend who is working and going to school full time and has become very good at hiding her secrets. This year through a mutual friend I was lucky enough to be introducedRead More

Explaining Fibromyalgia in Six Quick Points

Fibromyalgia is a term that has been thrown around for years. For many years the medical profession used Fibromyalgia as a catch all. People who had generalized pain that couldn’t be diagnosed would be given the diagnosis of Fibromyalgia. The medical profession didn’t really seem to understand what caused it, and what could be done to treat it. In the past decade the condition has become much more understood and there are new diagnostic criteria that the patient must meet.Read More

The Things I Wish Someone Would Have Told Me

Even though I’ve been diagnosed with Lupus, Fibromyalgia, and Endometriosis there are still things I come across that I wish someone would have told me about. You all know what I’m talking about, those little “tricks of the trade” that people who have been dealing with that condition for awhile and no one shares with the newbie. So after having a discussion with several people across several different groups, I have complied a list of things by asking others whoRead More

Unrest – Movie Review

November 18, 2017 Awareness, Diagnosis, Product Reviews

This week I was contacted by Jennifer Brea about a movie she has done about living with ME/CFS. She asked if I would be willing to Screen the movie she had produced and then review it here. After looking into the Project I decided that I would be glad to preview the movie and provide a review of the project for all to read. Unrest is centered around Jennifer Brea and her fight against Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), mostRead More

Epilepsy, The System Shocker

What is the first thing you think of when you hear the word “Epilepsy?” What about “Seizure?” Normally, people think of someone on the floor convulsing. What they do not realize is that there are over 40 different types of seizures; some of these you will never know the person is having that seizure unless you know exactly what to look for. Unfortunately, that person will know and feel the after affects for sometimes and hour or days to comeRead More

Dysautonomia- The In’s & Outs

October is Dysautonomia Awareness Month. What is Dysautonomia (can also be called Autonomic Dysfunction) you might be asking?? If you look it up you can find all kinds of information. According to Dysautonomia International, dysautonomia is a very broad term that causes a some sort of malfunction of the Autonomic Nervous System(ANS). Let me pause here and explain what what the AND does so you can have a better idea of what problems could arise. The ANS Controls the bodyRead More

Raising Awareness of Invisible Illness 

Invisble illness, invisible disability……. To those who don’t have one, most would assume that it’s in your head. Thus invisible. However, this so far from the truth An Invisible Ilness is an illness that cannot be seen outwardly.  So for instance; Migraines, Lupus, Rheumatoid Arthritis, Kidney Disease, thyroid disease, Heart disease, arthritis, fibromyalgia, Chronic Fatigue Syndrome, or Chronic Pain. This list goes on forever!!  Invisible illnesses could even include mental illnesses. You can’t and most of the time will neverRead More

Cyclic Vomiting Syndrome 

When you hear CVS what do you think? If you are like most you probably think of the big box pharmacy. And you wouldn’t be alone in this. That’s what most would think. However, if you have CVS or know someone who suffers from it, that is not the first thing that comes to mind. You would probably think of Cyclic Vomiting Syndrome. What is that you ask!? We will discuss that in today’s post. We will look at whatRead More

My Story/Self-Advocacy

January 26, 2017 Diagnosis, Uncategorized

Self-advocacy is defined as the action of representing oneself or one’s views or interests.  Advocating for ones-self becomes imparitive when you are diagnosed with any type of Chronic Illness. It’s a dog eat dog world out there and sadly no one but you can ever truly stand up for what you believe in!! And to get the proper care and treatment for your condition.  It’s just been in the last couple of years I have learned just how important thisRead More

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