How I Really Feel About…….. Pain

Pain….. is something I deal with daily. And I am guessing that many of you do as well! It has just become a part of our daily lives and something many of us don’t give a second thought to. And most of us would give anything to have one pain free day where nothing hurt at all without having to take a pill to get that way. That being said it has become a BATTLE for some to actually get the medicine that they need to treat said pain. Thanks to all those who are abusing pain medicine it makes those of us who actually battle chronic pain to also be viewed as an addict to some care providers. It is so sad that people who have chronic pain and live in pain everyday have to jump through such hoops just to get the medicine that we need to be able to function.

I usually try to stay away from the highly debated issues like this, but I read something that really struck a chord with me this weekend. A fellow Lupie posted that she got to the point where she could no longer handle her pain at home with all the alternative options, and ibuprofen she has at home. So she went to the ER, simply because she didn’t know what else to do. And of course because her primary complaint was pain, she was looked at by some of the care providers that she was simply drug seeking. And I know she is not alone in this I know this happens all the time. It has happened to me when I went in to the ER with a Hemiplegic migraine, there was no test to show that I was truly in pain so its easy to assume that I really just want pain medications. I even had one doctor tell me that I was just a hypochondriac and that there was no reason for me to be seeking treatment in HIS ER.

That’s the whole problem with autoimmune conditions and chronic pain syndrome, there is not always a blood test or imaging that will show that the patient is truly hurting. Most doctors don’t understand autoimmune conditions therefore they don’t understand why we are in pain. If they can’t see a lab result change or something on an MRI or CT Scan to explain the pain they just don’t get it.  And it frustrates me to no end that I can’t be honest about my pain with some of my doctors without them looking at me and thinking I just want the drugs. When in all reality I just want a day where I can wake up and function like a normal person. I don’t like how the pain medications make me feel but if that is what I have to do to function then so be it. I think many of you would agree with me when I say I just want a day without pain. I would give almost anything to have a day, a week, a whole seven days where I didn’t hurt somewhere and I could do all the things that I want to do without having to spend the next day(s) in bed.

The government at the local, state and federal levels are trying to do what they can to change how pain medications are prescribed and filled to decrease the level of abuse. In some states you are only allowed a seven day prescription no matter what the reason for needing pain medication is. In other places you have to give a urine sample every thirty days before you can get a new script to show that you are really taking the medicine and not selling it. Pharmacies are now being linked in many states throughout their local areas to try to prevent those abusing drugs from doctor hopping and having multiple scripts from multiple different doctors. While all of this is positive and will hopefully start to decrease the abuse of pain killers. It has actually made it harder for those of us who really need it to function. We are being made to jump through more hoops then ever before.

The real question I guess is how do we change the views of these care providers, especially ER providers. Where they see a large amount of drug seekers everyday. What can we do to prove to them that we aren’t wanting more and more medications, that we just want help getting through this flare up. Even with our conditions in our charts that say LUPUS, MIGRAINES, ENDOMETRIOSIS or whatever conditions you have that cause pain, they still often times wonder. I have thought about this a lot and have come to the conclusion that we will never change the way they look at us. We just have to have tough skin and prove to them that we don’t want an extra script or something new to take at home, we just needs something to break the cycle we are in. Maybe one day more doctors and care providers will start to understand the conditions that cause chronic pain. Until then we are stuck in this horrible rut and just have to prove our self to each new provider, and show them who we are and what we stand for.

With Love,

Amber

Raising Awareness of Invisible Illness 

Invisble illness, invisible disability……. To those who don’t have one, most would assume that it’s in your head. Thus invisible. However, this so far from the truth An Invisible Ilness is an illness that cannot be seen outwardly.  So for instance; Migraines, Lupus, Rheumatoid Arthritis, Kidney Disease, thyroid disease, Heart disease, arthritis, fibromyalgia, Chronic Fatigue Syndrome, or Chronic Pain. This list goes on forever!!  Invisible illnesses could even include mental illnesses. You can’t and most of the time will never see mental illness outwardly. They are conditions that can not be seen by just looking at someone. They are conditions that may be wreaking havoc on a person internally but you would never know because they may or may not be showing any signs outwardly. The Invisble Disabilities Association has deemed October 15, 2017 – October 21,2017 to be Invisoble Disabilitoes Week Online. A week to celebrate if you will, or bring conditions like these to the forefront. So let’s do just that. 
When you see someone in their thirties get out of a car they just parked in a handicap spot. What’s your first thought? For most I would almost guarantee it’s not “Oh how sad, I wonder what condition has made them disabled!”  For most it is probably more along the lines of “Look at that fat lazy girl taking up a handicap spot. I bet that tag belongs to her grandma or somethings!”  Now, don’t get me wrong not everyone thinks that way. But I know a large amount of people do. I have even caught myself at times thinking things I shouldn’t. Sadly in this day in age it just seems like second nature.  People don’t automatically assume that their may be a reason that a 32 year old slightly overweight female has some big bad illness because on the outside other than maybe a limp or the look of exhaustion on her face you don’t see anything wrong.  

    According To Everyday Health,  “But for the millions of people who are living with arthritis, fibromyalgia, chronic fatigue syndrome, and other forms of pain that are “invisible illnesses,” explaining what’s wrong is another side effect of their condition. Not only do you have to put up with challenging, often painful, and sometimes debilitating conditions every day, but on top of that, you may have to face skepticism from people — friends, family, and co-workers, as well as strangers — who don’t understand what’s wrong with you.”

    So what do you do to get past the skepticism and the non-believers? Do you put up bumper stickers with a list or your conditions? Or wear a T-shirt that says something along the lines of “Yes, I’m really sick? No!  Because you can’t change the way people think.  All we can do is pass on awareness to our friends and family. And even the people who follow us on social media. The only way we will ever get past the way people who view those of us with invisible illness is awareness. 

    Awareness can come in many forms. For me Blog. I can get my information out to larger volumes of people by blogging. I also use My social media accounts as platforms to spread awareness. Do people get tired of it? I’m sure! But we have to spread awareness for the Invisiblem Illnessea that are touching our families and friends. Should we shove it down peoples throats? Absolutely not, people aren’t going to change!  Some people will always think we are just lazy. And you know what we have to be okay with that bc we can’t change anyone else. 

    So help me help us this week by spreading awareness of Invisible Illness. One way we can do so this week is to change the frame on our face book profile picture to one that says I live with an Invisible Illness for the week. That just might open some eyes for people around you!!  The Huff Post posted this graphic and it feels like the perfect way to end this blog. But should you have any questions or anything please reach out!  

    Go out and spread awareness of your Invisible Illness/Disability!

    https://www.everydayhealth.com/pain-management/invisible-illness-when-others-cant-see-your-pain.aspx

    https://m.huffpost.com/us/entry/8178886

    Pain Medication…. The Debate

    Ma’am I see you have scheduled pain medicine on your list of meds……… Yes, I take them for my PAIN….. What do you need pain medicine for????  Well, let’s see. Could it be the Systemic Lupus? Or Maybe the Endometriosis? Or could it be the interstitial cystitis? Or maybe the chronic migraines or fibromyalgia?????? 

    For some pain medicine is the only way that they can make it through the day. Maybe even the only way they can get out of bed!!!  For others it’s just something they can take a couple times a week and be good. Why is it that those of us with documented conditions that are known to cause pain are still looked at like drug seekers? 
    Have you ever been on the receiving end of questions about the medication you take that just gets you through the day? Do you ever feel like you are treated like a druggie or a criminal because you need prescription pain meds? 

    There is nothing more frustrating to me then being looked at like I’m a drug seeker when I go in to the dr or pharmacy because I take pain medication. And heaven forbid I ever go into the ER because if a hemiplegic migraine or a horrible lupus flair, and need some relief. When that happens it’s almost for sure someone will look at me like I’m drug seeking. This shouldn’t be!!! All the people out there who have abused the system and abuse prescription pain medication have ruined it for all the rest of us. 

    We shouldn’t be grouped into that category. Especially when we have multiple document conditions that can cause life altering pain. But we are. I see almost daily that there are lawmakers trying to pass a law that should prevent the abuse of narcotic pain meds. But if that happens will we stop getting the looks? Or will providers stop making us feel like we can’t seek medical treatment for fear of being treated like a drug seeker?? In my opinion no!!  It’s always going to be a problem for us. No matter what laws are passed and how much thy try to cut down on the abuse of prescription drugs I feel like we are always going to be treated poorly. It’s always an assumption that just because we take the meds we are a druggie. 

    I’m not saying every doctor or nurse or pharmacy treats people like that. But I guarantee that at least 5 or more of the people who are reading this could tell us a story about how they were treated or not treated because of the medication listed on their home Med list!

    How do we stop this unfair treatment? How do we stop feeling like everyone assumes the worst of us?  I wish I knew. But we need to find a way. Find a way to prove to the world that just because you take pain meds you are a seeker or a druggie. Prove to the world that these conditions that we suffer from everyday cause such pain that we need those meds. Prove to people that sometimes without those meds we wouldn’t be able to get out of bed. Or complete our daily activities. And sometimes even WITH the meds we can not complete any of our daily routines. Do we carry a sign that has a list of our conditions? Sadly, that wouldn’t help. Because if you haven’t experienced the pain of these conditions yourself you can never fully understand. 

    How do we prove to the world that just because there are those scummy people who buy meds for abuse or steal meds to abuse them, that we aren’t all that way? Sadly, in this day an age there is such a high rate of abuse of prescription meds that I don’t know that we will ever be able to prove our case. According to the American Society of Addiction Medicine, Of the 20.5 million Americans 12 or older that had a substance use disorder in 2015, 2
    million had a substance use disorder involving prescription pain relievers. And In 2012, 259 million prescriptions were written for opioids, which is more than enough to
    give every American adult their own bottle of pills!!! 

    I don’t know about you but to me that data is staggering. And the fact that Drug overdose is the leading cause of accidental death in the US, with 52,404 lethal drug overdoses in 2015. Opioid addiction is driving this epidemic, with 20,101 overdose deaths related to prescription pain relievers is beyond understanding.  I completely underatand why law makers and medical providers want to find a way to cut down on the number of people taking prescription narcotics. But what they don’t seem to understand is that there is a large population with chronic pain issues who truly require these meds. 

    According to the American Academy of Pain Medicine; pain is a significant public health problem that costs society at least $560-$635 billion annually, an amount equal to about $2,000.00 for everyone living in the U.S. This includes the total incremental cost of health care due to pain from ranging between $261 to $300 billion and $297-$336 billion due to lost productivity (based on days of work missed, hours of work lost, and lower wages).  These numbers are crazy to me. Do all these people really need pain medication or are some of them abusing it? Probably a little of both.  

     Chronic Pain is a real thing and needs to be dealt with. And those who really need the meds should be able to get them without feeling like they are being looked upon negatively.  I hope and pray that there is a way for this to be done. But at this point I don’t know how to go about it!  (Okay rant over!)

    If you would like to share your story about how you have been treated negatively because you take prescription meds or have requested meds because of you condition. Please place those stories in the comments or email me. I would love to read them and compose another blog post with everyone’s story. 

    -Amber 
    Resources:

    http://www.asam.org/docs/default-source/advocacy/opioid-addiction-disease-facts-figures.pdf

    http://www.painmed.org/patientcenter/facts_on_pain.aspx

    Medical Marijuana….The Real Story! 

    The big IT THING these days for treatment of just about anything is Medical Marijuana… How do you get it? Does it really work? How does it help with chronic illnesses? How do you take it, what forms does it come in? Lets take a look at a few diseases and how they are effected by Medical Marijuana! 

    Although cannabis is still illegal in the United States under the federal government, many individual states have legalized cannabis for VALID medical reasons. Each state has its own list of qualifying condition, and some states allow doctors to approve a medical condition that is not ok the legalized list. There are too many states and conditions for me to write them all out for you. So if you are interested in the approved conditions in each state check out the link below. https://www.leafly.com/news/health/qualifying-conditions-for-medical-marijuana-by-state

    Lupus is often manifested with joint pain and fatigue. Although it can effect many parts of the body and in many different ways. Medical Marijuana is often used to treat pain and inflammation mostly in Lupus patients. Patients are quoted saying they prefer using Cannabis rather than pain pills or muscle relaxers because there are fewer side effects for most when using Cannabis. It is said that the most effective ways to treat lupus with cannabis is to do so with high levels of CBD capsules taken orally daily. Although the capsules can be the most difficult to find. Juicing the leaves also seems to be an effective treatment according to research. And vaporizing CBD can be a good way to help lupus sufferers sleep. One can also eat the edible CBDs to help treat lupus. Although like anything finding the proper dosage can be frustrating, as it can be a series of trial and error. 

    Fibromyalgia is said to effect nearly 5 million Americans. It is a poorly understood condition that can cause deep tissue pain, fatigue, depression headaches and even insomnia. Research from 2014 said that most find medical marijuana to be far more effective than any of the prescriptions on the market designed to treat fibromyalgia. From this study it was found that 62% of the people who tried medical marijuana as treatment found it to be very effective. While only 5% said it did not provide them with any relief. Most people will take the capsules for fibromyalgia or in similar forms to the treatment of Lupus. Most commonly for fibromyalgia it seems that the capsules, the edibles or oils/creams are the forms most used. 

    Interstitial Cystitis (IC) is a pain bladder condition that effects more than 4 million people in the United States alone. Through research it seems that cannabis extracts may offer new hope for people with this very painful condition. IC causes symptoms like a urinary tract infections, abdominal discomfort and bladder spasms. In Illinois where cannabis is legal for medical treatment and IC is an approved diagnosis to receive cannabis. The IC Network found that about 63% of those diagnoses and use some sort of cannabis to treat their symptoms, and reported that the cannabis decreased their symptoms by 50%. Eighteen percent of those surveyed reported that cannabis completely relieved their symptoms. Fourteen percent said that it helped their symptoms by at least 25 percent. Although marijuana is still generally smoked to provide relief from pain, other forms are being developed that eliminate the effects of the “high,” yet preserve the medicinal effects. Since cannabis has had such a high rate of symptom control in IC, the pain relieving and anti-spasmodic effects of cannabis are now being looked into for treatment of other conditions. Vaporizing CBD or using CBD oils can be used along with capsules for treatment. 

    FORIA a company based out of Colorado is saying that their cannabis based product can help relieve menstrual cramps. This compound has not been studied as to how it would effect endometriosis. But one could assume that if it can help with menstrual cramps that the mechanism of action would be the same or similar for someone with Endo. FORIA was formulated to to maximize the muscle relaxing and pain relief properties of cannaboids. Without the psychotropic or feeling of being high like actual cannabis. The capsule is a blend of THC which is known to relax muscles and cramping in the body. One could also use CBD oils and creams for treatment if Endo. 
    Cannabis can be used to treat just about anything without the side effects of major pharmaceuticals. Cannabis has very few side effects and most could be viewed as positive effects. Like mood improvement, increased appetite, and better sleep. The major problem with getting medical marijuana is that in most states it is not legal. And in the states that it is legal your condition may not be on the approved list in order to get approved for medical marijuana. 

    If you feel that you or Someone you know could benefit from the use of medical marijuana in a state where it is not legal. Please contact your legislator and check for any movements in your state for the legalization of medical marijuana. 

    Note: To see the forms and ways to consume medical marijuana check out this website. https://unitedpatientsgroup.com/resources/methods-of-consumption

    While this method of pain/symptom control may not be for everyone. Research clearly shows that it is helping people. It is not a common method of treatment yet, but based on the increased use of CBD I think it will become more and more common. 
    -Amber

    Resources:

    https://www.leafly.com/news/health/treating-lupus-with-cannabis

    Marijuana Rated Most Effective for Treating Fibromyalgia

    Treating Interstitial Cystitis with Cannabis

    Can Marijuana Relieve Menstrual (and Possibly Endometriosis) Pain?


    http://www.impactcannabis.org/endometriosis/

    https://www.whaxy.com/learn/does-cannabis-treat-lupus

    What is Interstitial Cystitis?

    Interstitial Cystitis….. I’ve never heard of this? What is it? How would it make me feel??

    Interstitial Cystitis or IC (Bladder Pain Syndrome BPS) is defined as a chronic or long-lasting, condition that causes painful urinary symptoms. It is a feeling of pain and pressure in the bladder without having an infection or other clear causes.

    What are the SYMPTOMS of IC- The symptoms from this condition vary widely from person to person. That being said the symptoms may also come and go and not be continuous. Some people state they feel like they have a bladder infection, even though no infection is present. Women also complain of painful sex, discomfort, pressure, tenderness or pain in the bladder, lower abdomen, and pelvic areas.

    What CAUSES IC? – Experts are not totally sure what causes IC/BPS but below are some theories of the cause.

    • A Defect in the bladder tissue, which may allow irritating substances in the urine to penetrate the bladder
    • A type of inflammatory cell, called a mast cell. This cell releases histamine and other chemicals that lead to IC/BPS
    • Some in the urine that damages the bladder
    • Change in the nerves that carry bladder sensations so pain is caused by events that are not normally painful (like the filling of the bladder)
    • The body’s immune system attacks the bladder. Similar to other autoimmune conditions
    • Having a family member with IC/BPS increase your risk of developing either

    How is IC/BPS DIAGNOSED? At this time there is no medial test that can tell a patient they do or do not have IC/BPS?

    • To make the diagnosis the physician first determine if your symptoms are typical for IC/BPS.
    • Next they will need to determine if there could be another cause of your symptoms.
    • The doctor will need to take a detailed medical history including: how long the symptoms have been present, what symptoms you are having, past health problems,  current health problems, any medication (prescription or OTC)you are taking, and your diet.
    • They will do a physical and neurological exam
    • Your provider will most likely do voiding tests and ask about pain related to voiding.
    • They can also do a couple of different procedure to check for IC/BPS
      • Cystoscopy- using a special tool to look into the bladder. This test will also rule out any kind of cancer.
      • Urodynamic Evaluation- this will involve filling the bladder with water through a small catheter. This will measure the bladders pressure as the bladder fills and empties. Patients with IC/BPS the bladder has a small capacity and maybe pain with filling.

    How is IC/BPS TREATED? IC/BPS can be treateed with lifestyle  changes, bladder training, physical therapy, medications, surgery, botox or a combination of any of the above.

    • Diet- People with IC/BPS should try to avoid: alcohol, caffeine, spicy foods and any foods high in acid.
    • Lifestyle- physical therapy, limiting stress
    • Medications- some of the medicine that can be used to treat IC/BPS are: Oral Pentosan Polysulfate, DMSO, Hydroxyzine, Amitriptyline, Heparin
    • Hydrodistention- a procedure usually done under anesthesia to fill the bladder back up to normal size by instilling saline

    Can IC/BPS be CURED? It is possible for IC/BPS Symptoms to come back even if the disease has been in remission for a long time. No one knows what causes the recurrence.  And there is no known guaranteed way to prevent said recurrences. The following can be attempted by the patient to try to prevent recurrence.

    • staying on their medication and treatments even after they are in remission.
    • avoid the foods known to cause a flare up.
    • avoid certain activities or stresses that may make IC/BPS worse.

     

    I hope you have learned a little about Interstitial Cystitis/ Bladder Pain Syndrome. Please feel free to share this for those who think they may be suffering from these conditions.

    -Amber

     

    Resources:

    • http://www.urologyhealth.org/urologic-conditions/interstitial-cystitis/after-treatment
    • https://www.niddk.nih.gov/health-information/urologic-diseases/interstitial-cystitis-painful-bladder-syndrome

     

    But You Look Fine…..

    We’ve all done it.  We’ve seen that person get out of the car at the local shopping center while parked in a handicapped spot. And thought, “There’s nothing wrong with them, who do they think they are?”  I’ll admit it I’ve thought that. And I think that’s the mentality of most. If you can’t SEE the disease it’s not there. Right?   NO Oh so WRONG!!!! Here’s some food for thought. 

    So if 96% of illnesses are invisible that just leaves 4% that one can outwardly see. In 1997, there were 26 million Americans considered to have a severe disability and only 7 million of them use a wheelchair, cane, crutches or walker (U.S. Department of Commerce).  So you can only imagine how that number has increased in the last twenty years with medical advancement.  Chances are someone YOU KNOW has an illness that they are suffering from that you can’t see or may not even know about. 

    So what exactly are invisible illnesses? They are conditions that you can not see by just looking at someone. These could be things such as: Anxiety, depression, mental illness, Autism, Chronic Pain, Chronic Fatigue Syndrome, Fibromyalgia, Lupus, Endometriosis, Interatitial Cystitis, Chrons Disease, EDS, epilepsy. Just to name a few. 

    So how do they hide their disease and how do they feel? Here’s my story!

    You may look at me and simply see a healthy-looking, overweight 30 something. However, just by looking at me you would never know the things I suffer from.  You wouldn’t know I have disabiling migraines, Systemic Lupus, Insomnia, Fibromyalgia, Interstitial Cystitis, Endometriosis, and Adrenal Inssufiency.  None of these things can be seen outwardly. 

    You wouldn’t know that I am almost ALWAYS in pain somewhere. Whether it be my back or my hands or even my feet. Something always hurts even on the good days. You wouldn’t know that chances are I didn’t sleep well the night before because of said pain. And I’m so tired that it took 15 extra minutes to convince myself to get out bed. Even after taking my medicine 45 min before finally rolling out of bed.  And then I spent another hour getting through the process of showering, hair, makeup and getting dressed because I had to take 4 breaks. And by the time I’m done with all that, I really just want to get back in bed because I’m EXHAUSTED and it’s not even 8am. 
    You won’t ever see me cry because I had to cancel plans for the 3rd time with my best friend. Because that is something I hide. You wouldn’t know that it rips me apart to have to stay home when everyone is out doing their daily activities. You wouldn’t know that grocery shopping is the vain of my existence. And something I have to mentally prepare for because it…..takes….so…..much……energy. And then actually putting the groceries away……that’s a whole different story. 

    You will never see my utter frustration with constantly being sick. I’m sick and tired of being sick and tired. Go ahead and think what you will. “She can’t really be sick again, can she!?”  “I bet she just doesn’t want to work so she says she sick!” Let me answer those questions. Yes, if I actually tell you I’m sick. I’m sick. The rest of the time I hide my illness for fear of being judged. As for just wanting to stay home. NO. I would much rather be in the workplace than on my couch. I didn’t go to college for 6 years not to use my degrees. 

    By looking at me, you would never know that I may have had a migraine for three days. And am fighting the constant urge to throw up because of the migraine. You wouldn’t know that I might be having a hemiplegic migraine and my hands are going numb, and it’s hard to talk. You might see me in public with my shades on and think nasty things about me, none of which are true. I don’t have a hangover. And I wasn’t beaten up. I simply have a migraine that won’t quit. So don’t be so quick to judge. 

    To talk to me you still probably wouldn’t see any difference in me. That is until the Brain Fog hits. It’s a thing!! Much like pregnancy brain or Chemo brain. You probably wouldn’t know that I constantly lose my train thought, sometimes in mid sentence. Or that some days I spend a lot of time looking for things that are right in plain site. You will probably notice me hunting for words while speaking. No, I’m not on drugs, or alcohol. I simply have brain fog associated with my invisible illness. Remember it’s a real thing….. look it up if you like. 

    By looking at me you wouldn’t ever know that often my bladder is on fire and I have to urinate all the time. And I may get up four to five times a night to do. Yes at the ripe ole’ age of 31!!   You also wouldn’t know that many days out of the month I have severe pain in my belly. Either caused by the Interstitial Cystitis or by Endometriosis!  The pain can be disabling at times. And I would like to cry and lay in the fetal position. But I don’t! You also wouldn’t know that my chance to carry my own baby is slim to none now due to my invisible illnesses. The one thing I have wanted more than anything my whole life is no longer a possibility. But you can’t see that! 

    Another thing you would never see by just looking at this 31yo lady is that the depression can be real. If you suffered from all the things I mentioned above you would probably be depressed too. You probably wouldn’t know that there are days when getting out of bed feels pointless. And crying is the only thing that seems to help.  Anxiety is also real. You never know when you get out somewhere if one of these diseases will strike its ugly head. Then what happens? How do you excuse yourself to head for home? Will I make it home safely? Should I bother my working family to come get me? All things you have to worry about because you never know when you could get sick. 

    Any invisible illness can take over your life. And not usually for the good. There are so many struggles. Loss of friendships and family members because they don’t understand. Or don’t take the time to learn. Loss of wages/job because of being sick. And anyone who says getting disability is Easy is so WRONG. It can take years for people with an “Invisble Illness” to get approved. Because just like you the judge can’t see if either. We look fine on the outside.  

    If you take anything away from this please thing before you hurl thoughtless, mean words at people. Try to be less judgemental when you see a young person parked in the handicapped spot. He or she probably needs it or they wouldn’t have it. Also, try to be a good friend! And know that even though we may cancel 5 times before we can actually have dinner with you, doesn’t mean we don’t value your friendship. It just means that we are listening to our bodies. Lastly, remember what your Mama taught you. “If you don’t have anything nice to say, don’t bother saying anything at all!”

    I hope this encourages others to share the things that no one can see outwardly due to their Invisible Illness. Let the world know what you go through. And others in the same boat know that they are not alone!!

    -Amber