Autism Awareness 


April is Autism awareness month.  But what exactly is Autism?  Autism is defined as a mental condition, present from early childhood, characterized by difficulty in communicating and forming relationships with other people and in using language and abstract concepts. Autism can affect any race, color or ethnicity. According to Autism Speaks, this condition is found in     1 in 68 children, even further broken down 1 in 42 boys and 1 in 189 girls are diagnosed with an autismRead More

The Truth About Endometriosis 

March 31, 2017 Endo, INFORMATIONAL POSTS

Endometriosis a condition that only affects women and can change their lives forever. Why am I discussing this you ask? Well, along with other conditions I have talked about this month, March is Endometriosis awareness month.  A lot of people have heard of the condition but don’t really know what it’s all about. Or how if affects a women’s life. So today I dove into some research about Endometriosis (Endo) so I could share with you. What is Endometriosis? AccordingRead More

The Real Story- Depression and Suicide

Suicide and depression are topics that no one wants to talk about. But they real. And it’s something we need to spread awareness about.  As well as spread awareness on how people can get help when they feel like suicide is their only option.  According to the CDC there were nearly 43,000 suicides  in the US in 2014 and nearly 1.3 million suicide attempts. That averages out to avoid 113 suicides each day or one every 13 minutes!  That sameRead More

World Down Syndrome Day


Today is Worldwide Down Syndrome Day. Why you are ask am I writing about this. Well, simply because everyone has probably known at least one person or one family that has been affected by Down syndrome. And we need to spread awareness. According to research there are approximately 200,000 cases in the US alone every year. And is something that can happen with any delivery. Down Syndrome is caused by the baby having an extra or copy of the 21stRead More

Multiple Sclerosis Awareness Month

March 18, 2017 INFORMATIONAL POSTS, Spoonies

March is Multiple Sclerosis Awareness month.  So I thought I would do my part and bring awareness to another awful autoimmune disease. I decided I wanted to cover the following topics in the blog.   What is MS? Who gets it? What are the symptoms? How is it treated? And what can we do to raise awareness? So let’s jump right in.  Per the Mayo Clinic no one is really sure of the cause of MS. But it is consideredRead More

Have You Laughed Lately?

Maintaining a sense of humor when you have a chronic illness is vital.

Tips to Help You Get Moving in Morning. 

Those first movements of the morning. You know what I’m talking about. When you wake up and try to move for the first time of the day……. Painful? Stiff? Frustrating? Are these words you would use to describe the morning in your world? They are for me. There are mornings when I wake up and am almost in tears bc I literally can’t straightened or bend (depending on the joint) and extremity! What can we do to help this? WhatRead More

What is Interstitial Cystitis?

Interstitial Cystitis….. I’ve never heard of this? What is it? How would it make me feel?? Interstitial Cystitis or IC (Bladder Pain Syndrome BPS) is defined as a chronic or long-lasting, condition that causes painful urinary symptoms. It is a feeling of pain and pressure in the bladder without having an infection or other clear causes. What are the SYMPTOMS of IC- The symptoms from this condition vary widely from person to person. That being said the symptoms may also come and go andRead More

Ways to Stay Healthy During the Cold and Flu Season

The cold and flu season can wreak havoc on those of us who are immunocompromised and are taking immunosuppressants. It seems like everywhere you go there are people hacking and coughing, sneezing and blowing their nose. And of course they are NEVER doing so in a way that could protect others from getting their germs. So here are a few questions to think about. Why do immunocompromised patients get more infections than others?  Why are infections often times more seriousRead More

A Day in the Life Getting Benlysta 

My Experience  Yesterday, I finally got my Benlysta infusion. I was 4 weeks late due to surgery, illness and then change in insurance. That was a LONG four weeks. I could really tell I was late. I’ve been hurting more and so dang tired. But then the days following are pretty miserable. However, I’ll take those two yucky days to get three good weeks. I am so grateful that I qualify for this medication and that it helps me!  EverythingRead More

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