Maintaining a sense of humor when you have a chronic illness is vital.
Interstitial Cystitis….. I’ve never heard of this? What is it? How would it make me feel?? Interstitial Cystitis or IC (Bladder Pain Syndrome BPS) is defined as a chronic or long-lasting, condition that causes painful urinary symptoms. It is a feeling of pain and pressure in the bladder without having an infection or other clear causes. What are the SYMPTOMS of IC- The symptoms from this condition vary widely from person to person. That being said the symptoms may also come and go andRead More
My Experience Yesterday, I finally got my Benlysta infusion. I was 4 weeks late due to surgery, illness and then change in insurance. That was a LONG four weeks. I could really tell I was late. I’ve been hurting more and so dang tired. But then the days following are pretty miserable. However, I’ll take those two yucky days to get three good weeks. I am so grateful that I qualify for this medication and that it helps me! EverythingRead More
If you suffer from ANY kind of Chronic Illness you know how hard it can be to maintain your friendships!! They just don’t understand what it’s like to have an illness that at times dictates your life. Most won’t understand that you don’t like to cancel plans and stay home. but sometimes it’s necessary. Many will think that you are just being flakey, lazy or just don’t want to leave your house. When in most situations that is far from theRead More
When you have a chronic illness and/or chronic pain the last thing you want to do is exercise. But it’s one of the first thing that you will hear from your doctor as a way to make you feel better. That often leaves you frustrated and annoyed, saying “I hurt too much and am way to fatigued to ever think about exercise.” However research shows that it does have benefits for the chronically ill. That leaves you asking “What kindRead More
Before sitting down to write this I did quite a bit of research to find the best recommendations to improves ones sleep. Things that we all haven’t heard multiple times The best recommdations I found came from Spark People. I will provide the link to the article at the end of this post. So here we go…. One step closer to better sleep. When you live with chronic pain, headaches, an autoimmune disease or an old nagging injury from theRead More
Job hunting alone can be daunting, now add a chronic illness and it can be downright scary. There are so many variables that can make the job hunt more difficult. How you are feeling daily to actually look for a job can make the hunt difficult. Then you add things like physical manifestations of your disease such as a limp, or being unable to walk without an aide. Or even your weakened immune system dictating what kind of jobs youRead More