Lupus

Raising Awareness of Invisible Illness 

Invisble illness, invisible disability……. To those who don’t have one, most would assume that it’s in your head. Thus invisible. However, this so far from the truth An Invisible Ilness is an illness that cannot be seen outwardly.  So for instance; Migraines, Lupus, Rheumatoid Arthritis, Kidney Disease, thyroid disease, Heart disease, arthritis, fibromyalgia, Chronic Fatigue Syndrome, or Chronic Pain. This list goes on forever!!  Invisible illnesses could even include mental illnesses. You can’t and most of the time will neverRead More

Lupus Paychosis/ Neuropsychiatric Lupus 

Lupus psychosis or  Neuropsychiatric Lupus sounds pretty scary right? Well it is. It may also sound pretty far fetched…. That it is not!!!!It is a truly scary condition that someone with lupus can deal with, but others who don’t have lupus might have trouble understanding.  So what exactly IS LUPUS PSYCHOSIS??? Or Neuropsychiatric Lupus? The American College of Rheumatology (ACR) has identified “19 different ways that lupus can affect nervous system, including the brain. This complication of lupus is knownRead More

Pain Medication…. The Debate

Ma’am I see you have scheduled pain medicine on your list of meds……… Yes, I take them for my PAIN….. What do you need pain medicine for????  Well, let’s see. Could it be the Systemic Lupus? Or Maybe the Endometriosis? Or could it be the interstitial cystitis? Or maybe the chronic migraines or fibromyalgia??????  For some pain medicine is the only way that they can make it through the day. Maybe even the only way they can get out ofRead More

Sick of Being Sick

April 10, 2017 Flare, Illness, Lupus

Since the beginning of March I’ve been sick!  Almost every day I feel terrible. And I have been running high fevers of an on all that time. I’ve had enough antibiotics for three people. Even IV antibiotics. And still sick. I have a sore throat, runny nose, constant wheezing and coughing.  Always nauseated and have actually lost about 5 lbs.  Now my lupus is flaring because I haven’t had my treatment since February because I have been sick. And can’tRead More

My Letter to Lupus 

March 28, 2017 Lupus, Self help

Dear Lupus, 
You came into my life with asking, without an invitation. You came in and made it known by all that you were GOING TO BE THE CENTER OF ATTENTION. Who asked you to come? Who asked you to come into my body and take my life away?? I sure as hell didn’t. 
Looking back you made yourself known and reared your ugly head the first time when I was in highschool. Although no one called you that. TheyRead More

Tips to Help You Get Moving in Morning. 

Those first movements of the morning. You know what I’m talking about. When you wake up and try to move for the first time of the day……. Painful? Stiff? Frustrating? Are these words you would use to describe the morning in your world? They are for me. There are mornings when I wake up and am almost in tears bc I literally can’t straightened or bend (depending on the joint) and extremity! What can we do to help this? WhatRead More

Medical Marijuana….The Real Story! 

The big IT THING these days for treatment of just about anything is Medical Marijuana… How do you get it? Does it really work? How does it help with chronic illnesses? How do you take it, what forms does it come in? Lets take a look at a few diseases and how they are effected by Medical Marijuana!  Although cannabis is still illegal in the United States under the federal government, many individual states have legalized cannabis for VALID medicalRead More

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