What Was I Writing About???? Oh YA…. BRAIN FOG

February 10, 2017 Uncategorized

When someone mentions brain fog before you have ever experienced it you just shake your head and wonder what they are talking about. Once it hits you, you never wonder again!!! It real, and its real frustrating. It can make holding a real discussion very hard because you can’t come up with the words you want. It also can make you feel really dumb…. Not because you lack intelligence, but because you can’t say what you mean. Brain fog canRead More

What is Interstitial Cystitis?

Interstitial Cystitis….. I’ve never heard of this? What is it? How would it make me feel?? Interstitial Cystitis or IC (Bladder Pain Syndrome BPS) is defined as a chronic or long-lasting, condition that causes painful urinary symptoms. It is a feeling of pain and pressure in the bladder without having an infection or other clear causes. What are the SYMPTOMS of IC- The symptoms from this condition vary widely from person to person. That being said the symptoms may also come and go andRead More

Blog Lovin’

February 8, 2017 Uncategorized

<a href=”https://www.bloglovin.com/blog/18450255/?claim=qv75aspkhem”>Follow my blog with Bloglovin</a>

Ever Feel Like Any of These?

February 8, 2017 Uncategorized

Something to Read

February 5, 2017 Uncategorized

I’m sorry this won’t be my normal Blog post but I’m down with a killer migraine. So here are a couple good articles for y’all to read. Hope to get a real blog up tomorrow. Have a happy symptom free weekend.  *http://februarystars.co.uk/2016/03/offer-advice-someone-chronic-illness/ *https://www.psychologytoday.com/blog/turning-straw-gold/201603/when-should-the-chronically-ill-see-doctor-heres-guide -Amber

Tips and Tricks for Traveling with Chronic Illness 

January 28, 2017 Uncategorized

Traveling is hard no matter. Making sure you get to the airport and your gate on time. Plus, all the hard work you have to put in before getting to the airport. The planning, the packing! Not just clothes but medication. Where do you put those? How do you travel with them safely?  Then you add a chronic illness and chronic pain on top of everything and traveling seems impossible. There are ways and “tricks of the trade” to makeRead More

My Story/Self-Advocacy

January 26, 2017 Diagnosis, Uncategorized

Self-advocacy is defined as the action of representing oneself or one’s views or interests.  Advocating for ones-self becomes imparitive when you are diagnosed with any type of Chronic Illness. It’s a dog eat dog world out there and sadly no one but you can ever truly stand up for what you believe in!! And to get the proper care and treatment for your condition.  It’s just been in the last couple of years I have learned just how important thisRead More

Ways to Stay Healthy During the Cold and Flu Season

The cold and flu season can wreak havoc on those of us who are immunocompromised and are taking immunosuppressants. It seems like everywhere you go there are people hacking and coughing, sneezing and blowing their nose. And of course they are NEVER doing so in a way that could protect others from getting their germs. So here are a few questions to think about. Why do immunocompromised patients get more infections than others?  Why are infections often times more seriousRead More

A Day in the Life Getting Benlysta 

My Experience  Yesterday, I finally got my Benlysta infusion. I was 4 weeks late due to surgery, illness and then change in insurance. That was a LONG four weeks. I could really tell I was late. I’ve been hurting more and so dang tired. But then the days following are pretty miserable. However, I’ll take those two yucky days to get three good weeks. I am so grateful that I qualify for this medication and that it helps me!  EverythingRead More

Friendships…. And Chronic Illness

If you suffer from ANY kind of Chronic Illness you know how hard it can be to maintain your friendships!! They just don’t understand what it’s like to have an illness that at times dictates your life. Most won’t understand that you don’t like to cancel plans and stay home. but sometimes it’s necessary. Many will think that you are just being flakey, lazy or just don’t want to leave your house. When in most situations that is far from theRead More

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