The Honest Truth About Our Periods

Lets just really honest today! Periods…… they are not the favorite time of ANY ladies month. But even less so for those who have endometriosis. Men will never be able to truly understand what its like to deal with a periods every 28 days or how often you might be “lucky” enough to get to deal with these awesome body function.

We don’t have to talk about the obvious, the bleeding. But its a major part of why we all love them, oh so much. Then we are lucky enough to also get to deal with irrational mood swings, cramps that are not easily explained to men or others who don’t have to deal with those, and the bloating. Then there is the insatiable hunger. And of course we couldn’t want veggies, and fruits and lots of protiens. NO most women want anything sweet, salty or fried!!!!! Which does NOTHING for the ache that comes along with eating crap food.  Okay, you may be thinking that I am going overboard. But no…… I think most women would agree that, that one week of the month we would rather not deal with is far from pleasant and is oftentimes just awful.

NO, I am not here to write an ENTIRE blog post on how bad a menstrual period is. Because chances are those of you, that read past that first paragraph are women. Or men in committed relationships with a women so they know the ins and outs as well. What I really want to talk about is what we can do to make that week of every month a little easier.  So I went to my friend Mr. Google to help me with information for this post. Below you will find my (and others) recommendations for how to make that wonderful week a little easier for everyone involved.

1. Exercise With Lighter Activities –

If you are anything like me when you read this the first thing you said was “ARE YOU CRAZY, HOW WILL EXERCISE HELP?” But that may be my common response to several things LOL. In all seriousness a lady can increase blood flow which will help cut down on the cramps. So if you decide to do this you need to go light. Do easy exercises like yoga, or stretching or walking, some encourage swimming but that sounds like a disaster to me!!!!

2. Hug A Heating Pad

This is and always has been my go to. For any abdominal or back pain I have during my period. I find a good heating pad and don’t let it out of my site for the whole week. The heat can actually sooth your muscles which in turn eases your cramping and overall discomfort

3. Its Important to Drink Plenty of Water and Stay Hydrated

I know some of you are thinking “No way, I am already holding on to three pounds of water weight, why would I choose to drink more water?”  I know, it sounds crazy but the more water you intake, the easier it will be to eliminate the extra water building up in your body. We should always try to drink more water, because it really is good for out bodies even when we think it sounds crazy. No matter if we are on our cycle or not we should all really try to drink 10-8ounce glasses of water a day.

4. Avoid Caffeine

Caffeine has truly become an issue for many people around the world. But for women its important to remember that caffeine actually makes you hold on to water weight, and definetley contributes to that achjy, crampy, bloated feeling we often feel during out period.

5. Eat The Good-For-You Food

Even though the only things you want are chocolate, ice cream and french fries (okay, maybe that is just me), we should all really try to eat more fresh fruit and green veggies. By eating enough of the good stuff it could potentially help to steer you away from the bad choices. You could try snacking on carrots with hummus, apples with peanut butter (which will give you the sweet and the crunch you make be looking for,) or blend up a smoothing with good fruits.

6. Try To Stay On Top Of Your Sleep

We all need 7-8 hours of good sleep all the time. That is especially important for teens who are on their periods, They really need eight to nine hours of sleep per night. Getting enough sleep will help you wake up feeling refreshed and rejuvenated.

7. Take Notes

Being prepared is your best defense when it comes to that time of the month.You should start keeping a record of your period each month. You can do this on paper or now with just about everyone having smart phones there are great apps that you can get that help you keep track of not only the dates of your cycle but also the symptoms, and how heavy they flow is. After a few months of doing this you will be able to see a pattern and can talk to your doctor if needed.

8. Use Period Protection That Lets You Stay Active

These days there are pads and tampons for every shape and size. Even special items made who are more active. And completely natural options. But what it comes down to is efficiency and comfort. It doesn’t matter what the women in your family has used for 3 generations, or even what your best friend uses. Don’t be afraid to jump out of the comfort box and do some research on products that are out there. You honestly just need something that makes you feel less self conscious and takes care of what it is supposed to.  And be prepared to be able to change said pad or tampon every 4-8 hours. This is especially important for the younger girls in our life who may not have been told the risks of Toxic Shock Syndrome.

Since we are really being open and honest lets talk about a couple of other things. One being at what point should you contact your doctor about your cycle.

The symptoms that you need to be talking to your doctor about quickly:

  • heavy bleeding
  • extended bleeding (more than 7 days)
  • bleeding after sex
  • spotting
  • excessive clotting during periods
  • abdominal pain
  • any odorous discharge
  • excess hair growth on face
  • unexplained weight gain

Likely Causes of an Irregular Period

Many issues can cause irregular periods, things like changes in the bodies production of estrogen and progesterone can alter the normal pattern of a ladies cycle.  This is why young girls going into puberty and women approaching menopause often experience irregular periods.

Other common causes of irregular periods include:

  • Having an IUD
  • Changing birth control pills or using certain medications
  • Too much exercise
  • Polycystic Ovarian Syndrome (PCOS)
  • Being Pregnant or Breastfeeding
  • Stress
  • Overactive Thyroid (Hyperthyroid) or underactive thyroid (hypothyroid)
  • Thickening of or polyps on the uterine lining
  • Uterine Fibroids
  • Endometriosis

The hormone estrogen thickens the uterine lining before ovulation, so when estrogen levels become unbalanced the uterine lining sheds irregularly. This may result in heavy bleeding.

The conditions Endometriosis can also cause extreme cramps, very heavy bleeding, pain with intercourse and pain in the rectal area.

If you have any of the above issues or just want to talk to your doctor make an appt to do so. Most of the issues that cause irregular periods can be treated in one way or another.

With Love,

Amber

Why Is Sleep So Important?!?

Sleep…. sleep…..sleep. It’s all my doctors seem to want to talk about these days. I can count on every doctor I see to ask me how I’m sleeping. When I tell them the truth I always get THAT LOOK! A look I’m sure anyone with a chronic illness/pain is used to seeing. Then they proceed to tell me why I need to sleep more. That being said I’ve always wondered how much of a difference sleep really makes. And why it is so much more important for us (the chronically ill and those with chronic pain) than other people. So I decided I would do some research and pass on what I found to you guys!!

The 2015 Sleep in America Poll found that 21% of Americans deal with chronic pain, along with 36% who suffered, in a period recent to the time of survey, from acute pain. That shows that only 43% of the population report being pain free. Pain joins with stress and poor health in general equals poor sleep, shorter duration of sleep and poor sleep quality! The people who suffer from either acute or chronic pain are more likely to have problems sleeping that will impact their daily lives. More than half of the people with chronic pain and were part of the poll say that sleep difficulties have or will interfere with their work. That. Number drops under 25% for those who have no pain. Those with pain also report that lack of sleep often Interferes with their mood, the activities they may take part in, relationships and overall enjoyment of life.

People with chronic pain also feel that they have less control of their sleep, the report that worry more about lack of sleep could affect their health. This group of people also say that they are more likely to have their sleep impacted by environmental factors that make it more difficult to get a good night sleep. These could be things like noise, light, temperature, mattress or even the person who they share the bedroom with. Just to give you an idea the survey indicates that sleep is a significant problem for those with chronic pain. The statistics don’t lie. It showed that almost one in four people with chronic pain (23%) said that they have been diagnosed with some kind of sleep disorder by a dr. That is compared to just six percent of those who don’t have any issues with pain.

These statistics above show what we all know. They show that those with chronic pain issues don’t sleep well. But why is it so important?!? Some doctors feel that the duration and quality of sleep should be considered a vital sign, because both are known to be strong indicators of qualify of life and overall Health. It is recommended that a person gets 7-9 hours of sleep a night. The importance of good sleep should never be underestimated. Sleep deprivation has been clearly linked to increased rates of obesity and increased body fat. Along with a compromise immune system, and even diabetes. Research shows that a full nights sleep (7-9 hours) is essential to help the body repair and rejuvenate. Lack of sleep has been linked to poor performance on the job and very slowed reflexes behind the wheel. A non-restorative sleep pattern can potentially cause diminished energy, depressed moods, fatigue and along with experiencing more pain. That being said new research is showing that getting a full night of sleep can not only help you be more alert and it can also reduce inflammation and pain. Basically the takeaway from this is that sleep deprivation and poor sleep along with chronic pain are part of a vicious cycle, that can be hard to break.

The good news they say, is that sleep deficits can be remedied easily and the effects of lack asleep can be reversed. There are specific ways to improve your sleep hygiene that can give you immediate rewards. The American Sleep Association there are some steps that one can take to make sure that you can get better sleep. These steps are done to help you wake up feeling refreshed and energized for your day!

The following are steps recommended by the American Sleep Association(ASA):

  1. Keep the room cool- In General when we sleep our body temperature drops. So it is recommended that you keep your bedroom around 65 degrees. That is so you can add blankets. The drop in body temp signals your body that is time to sleep!
  2. Go to bed earlier- Just like kiddos, adults can get over tired and won’t be able to fall asleep. Also for those who like to stay up late and sleep fewer hours research has shown that those who keep that as part of their routine oftentimes report more negative thoughts and more pain.
  3. Stay on Schedule- In order to help your body get used to sleep, try to go to bed and get up at the same time. By doing this your body will get used to this rhythm. This making sleep somewhat easier.
  4. No Naps- This is a very debated topic. That being said the ASA says that nap decrease the “sleep debt” that makes it harder to fall asleep at night. So by napping during the day you increase the odds that you will have trouble falling asleep and/or staying asleep!
  5. Turn off screens- Turning off all kinds of sleep a couple hours before bedtime for all ages allows the body and brain to settle down and shift into sleep mode.
  6. Make the bedroom only for sleep and intimacy- In today’s society the bedroom have become multifunctional. It is no longer just for sleep, it is used by some as their office, or a place to workout or a movie theater of sorts. By making your bedroom uni-functional it will make it easier to sleep there. It’s hard to relax and go to sleep when you can see your desk piled high with tasks that need to be completed. By making the bed and bedroom just for sleep one can hope that your brain will subconsciously associate being in the bed or bedroom with being asleep. They also say that one shouldn’t lay in bed and surf their phones, watch TV or even read. They suggest sitting in a chair in the bedroom to do those tasks and crawl into bed only when you are feeling sleepy.
  7. No caffeine or other stimulants after noon – in order to get better sleep it’s best to avoid any caffeinated beverages, cigarettes and alcohol after noon. By doing so it is hoped that your body & mind will be able to wind down and sleep when it’s time for bed.

Let me be real and honestly say I don’t think that this is something easily changed or reversed. As someone who has suffered with insomnia for many years and have made many of these changes through the years. And I just don’t see the great change in my sleep by doing so. That being said these tips may benefit one of you reading this greatly. So I feel like even if it hasn’t helped me I want to share this information with others in hope that it can help someone else. By doing this research I was able to see the dangers that can come from not sleeping. This the importance of getting a good nights sleep every night. So I am willing to make these changes once again and see if it is beneficial to me. I will try the tips listed above for a month or so and report back to you all as to whether or not they have improved my sleep!

Finally take a moment to look at the graphic below. It shows some Interesting information on this topic. Graphic is from the National Sleep Foundation.

With Love,

Amber

Resources

https://www.spine-health.com/wellness/sleep/chronic-pain-and-insomnia-breaking-cycle

Better Sleep Guide

https://www.sleepassociation.org/sleep-disorders-n/insomnia/amp/

How I Really Feel About…….. Pain

Pain….. is something I deal with daily. And I am guessing that many of you do as well! It has just become a part of our daily lives and something many of us don’t give a second thought to. And most of us would give anything to have one pain free day where nothing hurt at all without having to take a pill to get that way. That being said it has become a BATTLE for some to actually get the medicine that they need to treat said pain. Thanks to all those who are abusing pain medicine it makes those of us who actually battle chronic pain to also be viewed as an addict to some care providers. It is so sad that people who have chronic pain and live in pain everyday have to jump through such hoops just to get the medicine that we need to be able to function.

I usually try to stay away from the highly debated issues like this, but I read something that really struck a chord with me this weekend. A fellow Lupie posted that she got to the point where she could no longer handle her pain at home with all the alternative options, and ibuprofen she has at home. So she went to the ER, simply because she didn’t know what else to do. And of course because her primary complaint was pain, she was looked at by some of the care providers that she was simply drug seeking. And I know she is not alone in this I know this happens all the time. It has happened to me when I went in to the ER with a Hemiplegic migraine, there was no test to show that I was truly in pain so its easy to assume that I really just want pain medications. I even had one doctor tell me that I was just a hypochondriac and that there was no reason for me to be seeking treatment in HIS ER.

That’s the whole problem with autoimmune conditions and chronic pain syndrome, there is not always a blood test or imaging that will show that the patient is truly hurting. Most doctors don’t understand autoimmune conditions therefore they don’t understand why we are in pain. If they can’t see a lab result change or something on an MRI or CT Scan to explain the pain they just don’t get it.  And it frustrates me to no end that I can’t be honest about my pain with some of my doctors without them looking at me and thinking I just want the drugs. When in all reality I just want a day where I can wake up and function like a normal person. I don’t like how the pain medications make me feel but if that is what I have to do to function then so be it. I think many of you would agree with me when I say I just want a day without pain. I would give almost anything to have a day, a week, a whole seven days where I didn’t hurt somewhere and I could do all the things that I want to do without having to spend the next day(s) in bed.

The government at the local, state and federal levels are trying to do what they can to change how pain medications are prescribed and filled to decrease the level of abuse. In some states you are only allowed a seven day prescription no matter what the reason for needing pain medication is. In other places you have to give a urine sample every thirty days before you can get a new script to show that you are really taking the medicine and not selling it. Pharmacies are now being linked in many states throughout their local areas to try to prevent those abusing drugs from doctor hopping and having multiple scripts from multiple different doctors. While all of this is positive and will hopefully start to decrease the abuse of pain killers. It has actually made it harder for those of us who really need it to function. We are being made to jump through more hoops then ever before.

The real question I guess is how do we change the views of these care providers, especially ER providers. Where they see a large amount of drug seekers everyday. What can we do to prove to them that we aren’t wanting more and more medications, that we just want help getting through this flare up. Even with our conditions in our charts that say LUPUS, MIGRAINES, ENDOMETRIOSIS or whatever conditions you have that cause pain, they still often times wonder. I have thought about this a lot and have come to the conclusion that we will never change the way they look at us. We just have to have tough skin and prove to them that we don’t want an extra script or something new to take at home, we just needs something to break the cycle we are in. Maybe one day more doctors and care providers will start to understand the conditions that cause chronic pain. Until then we are stuck in this horrible rut and just have to prove our self to each new provider, and show them who we are and what we stand for.

With Love,

Amber

Let Me Tell You How I Really Feel!!!

Disclaimer: These are my opinions and it’s okay if yours don’t agree!

As I lay here feeling as tho I can feel every….single…. part of my body and it all hurts. I decided to look for some inspiration. Something to get me through this trial. I decided why not? None of my other tricks are working. Not even my Gold Standard Go-To’s. Like sitting in a hot bath, I think I’ve used all the hot water in the house! Probably good that no one will need any for several hours yet. I can’t sleep because even my hair hurts. I started looking for other ways to deal with the pain. Tried guided meditation which has helped some in the past. NOTHING! I started reading other blogs, reading inspirations pages, and I found some that fit. Then I decided maybe my pain could help someone else so I’ll Blog. And it’ll be a good way to pass a few minutes where I can focus on something other than the pain. And I’ll

Place the inspirational things I found helpful throughout the post!

Chronic pain is all psychosomatic (all in your head) people have been told! First, I would like to know how many (if any) o have been told that?!?! Secondly , I would like to know what gives those “Doctors” the right to tell you the pain you are feeling isn’t real? And lastly, I would like to know if they have ever spent a week, a day or even a few hours totally overcome by PHYSICAL pain. No, I’m not talking about spraining an ankle, or hitting your funny bone. While yes, those things hurt, that pain isn’t going to last. You can see an end in sight! With chronic pain you look for that light at the end of the tunnel and see nothing. Nothing but BLACK. There is no light. Chronic pain is just that, pain that’s chronic. Pain that you will live with at some level EVERYDAY FOR THE REST OF YOUR LIFE!!

If I had a nickel for the amount of times I’ve heard “Well, I just don’t know how you do it! how you put up with all that pain!” I’d be a rich lady. My answer is always and forever will be, “It’s my only option. I don’t have another. I can’t just say you know today I’m not gonna deal and wish the pain away.” There are days I wish I could, like right now. In this moment I wish I could just say “I’m done with you for now pain and it would go away!” But I can’t. And neither can all the other hundreds of thousands who deal with similar things. So for all of you who also deal day in and day out with chronic pain I applaud you! You are some of the most courageous people I know! And it’s because of you that I know I can keep pushing through.

“Courage is not having the strength to go on; it is going on when you don’t have the strength.” – Theodore Roosevelt (1858-1919), 26th President

The sad part to me is that most chronic pain sufferers & Lupus Patients suffers in silence.

They feel that it is a better option to suffer alone than to open up to a close friend or family member about what is going on. It’s sad that we have to feel that way. But I know why it happens. Let me give you an example that maybe you can relate to. Have you ever been home from work on a sick day? Not welling enough to work but well enough that you can text or play on Social

Media? If you have been in this situation, did you receive any backhanded, dirty text, or comments about how much better you MUST be since you are up and on Social Media?!? Probably not. But the second you have a Chronic Illness or Chronic Pain and stay home and someone notices you on the Internet the rumors start rumbling about how you must not be THAT sick if you can be on Facebook. When it’s quite the opposite. You still feel like a giant pile of horse manure, but Facebook is giving you a much needed distraction from what you are dealing with. And if you really wanna know, It’s my business how I spend my time!! Not yours!!

Living with a Chronic Illness or Chronic pain sucks. That’s just all there is to it. You usually end up losing out on opportunities in every aspect of your life, simply bc the pain is too much. No one should ever have to deal with pain to the point that they can barely physically move bc their entire body hurts. In this day in age there should be more medicines available to treat these horrible life altering disorders more directly. Those of you non-spoonies may be thinking, so go to the pain Doctor and get on some meds and move the heck on. Well, sadly it’s not that easy. I am in the third largest city in my state and no pain dr will touch me bc I have Lupus and Fibromyalgia. They won’t even see me in their office. So I, like many others across this fine country, are stuck without or get medication from a family doctor who is not trained in treating chronic pain.

In many cases we have those who are abusing the system and pain medications who have ruined the system the rest of us. Those of us who truly need treatment and medications should NOT be punished based on the poor decisions of another person. Okay I’ll get off that soapbox.

But seriously if you’ve never lived a period in your life where pain took over don’t be so quick to judge those who have. We who suffer would gladly give it all away to have a normal life again. We didn’t ask for this, want this, and the largest majority of Lupus Patients did nothing to cause the situation that they are in. So please before you judge do a little investigating on your own. Don’t assume that just because I look like a normal 32 yo female that you can yell or give me dirty looks for using a handicap tag. I have it for reasons that you may never know.

All we can do is keep fighting the good fight!! Keep doing all we can to advocate that we get good care and the meds we deserve. We deserve the chance to live a normal (or as close to it as possible) life just like everyone else does!

It does not matter how slowly you go so long as you do not stop.”

– Confucius (551-479 BC),

Philosopher

With Love,

Amber