I am excited to announce that I have been nominated for the WEGO Patient Leader Hero award and WEGO Best In Show BLOG. WEGO Health is a mission-driven company connecting healthcare with the experience, skills, and insights of patient leaders. They are the world’s largest network of patient leaders, working across virtually all health conditions and topics. Click here to learn more about their Patient Leader Network
Advocacy
The Truth | It’s Okay Not To Be Okay
It’s okay……it’s okay to struggle, it’s okay to be real, it’s okay that you don’t always have your shit together. Life’s messy, especially when you live with some kind of chronic illness. Life isn’t all roses and champagne. Instead it’s full of messy houses, and dirty dishes. It’s full of down days where you can’t get out of bed, and high pain days. Life is real and that’s OKAY. When we live in a world of highlight reels and instagram perfect pictures it’s easy to forget that we live messy lives.
Focus On The Fight | Inflammatory Bowel Disease
Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.
This week we meet Collin Wong, and we will highlight: Inflammatory Bowel Disease, aka Crohn’s.
Before we jump into the full interview, Collin, please tell us a little about you outside of your health! Tell us about your hobbies or family!
I am a soon-to-be freshman at Case Western Reserve University, with a focus on pre-med. In fact, I hope to be a pediatric critical care physician one day! In my free time, I enjoy doing graphic design and playing the piano.
Focus On The Fight | Fibromyalgia
Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger and their health.
This week we will meet Pam Jessen, she has a multitude of chronic condition including the condition we will highlight this week: Fibromyalgia.
Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!
I am married to my incredible husband Ray, and we have one cat named Dorie. Our two kids Troy and Ashley have long flown the nest and we have three lovely grandsons (all Ashley’s boys!).
Lupus Awareness Month | My Lupus Journey
Today is May 1. For most that date isn’t significant, but for me it has a big meaning. May first designates the beginning of Lupus Awareness Month. May gives me 31 days to spread awareness I about a disease that 7.55 billion people worldwide live with everyday. So I thought there was no better way to start Lupus Awareness Month than to share my Lupus Journey. Here is a brief look at the past 7 years and my Lupus Journey!!
Focus On The Fight | Hyperhidrosis – Maria Thomas
Welcome to Focus On The Fight, a series of interviews that will be posted every Friday, focusing on a blogger and their health.
This week we will meet Maria Thomas, she has a multitude of chronic condition including the condition we will highlight this week: HYPERHIDROSIS
Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies!! I’m a bookworm, writer, editor, and a hyperhidrosis trailblazer and patient advocate. I work full-time in marketing, and my side hustle is my advocacy work. When I’m not going 90 miles an hour, I enjoy reading (obviously), handwriting letters to my pen pals, spending time in nature and playing with my Pug, Maya.
Focus On The Fight |Rapid Cycling Cyclothymia
Welcome to Focus On The Fight, a series of interviews that will be posted every Friday, focusing on a blogger and their health.
This week we will meet Maya Augelli. She has a multitude of chronic condition including the condition we will highlight this week: Rapid Cycling Cyclothymia.
Focus On The Fight | Stroke
Welcome to Focus On The Fight, a series of interviews that will be posted every Friday, focusing on a blogger and their health.
This week we will meet Lisa Deck. She has a multitude of chronic condition including the condition we will highlight this week: STROKE
Focus On The Fight | Myositis
Welcome to Focus On The Fight, a series of interviews that will be posted every Friday, focusing on a blogger and their unique health conditions.
This week we will meet Amy Nora. Amy has a multitude of chronic condition including the condition we will highlight this week: Myositis
Chronic Pain | What The Media Doesn’t Tell You
Living with a chronic Illness can be hard, plain and simple. Living with an invisible illness, one that causes chronic pain, is harder. It has become such a common practice for people to quickly judge another person based on their condition or based on their use of narcotic pain meds. It has even become true within our healthcare system and within the government. Sadly it is not uncommon for a patient to be looked upon as an “addict” simply because of a medication that they take. Much of this has happened in response to the media coverage of the Opioid Crisis and how the government is handling the crisis.
