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WOW…. June was a month for the books. I know I have been pretty MIA around here for the last month, I have been really struggling. It was a struggle just to get the things done that had to be done; much less doing things like blogging. I had all the best intentions to get all these great blogs up for you and really discuss migraine awareness month. But sadly that was just not in the cards. It was a month where it felt like everything that could go wrong, did.
Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.
This week we meet Collin Wong, and we will highlight: Inflammatory Bowel Disease, aka Crohn’s.
Before we jump into the full interview, Collin, please tell us a little about you outside of your health! Tell us about your hobbies or family!
I am a soon-to-be freshman at Case Western Reserve University, with a focus on pre-med. In fact, I hope to be a pediatric critical care physician one day! In my free time, I enjoy doing graphic design and playing the piano.
I feel so bad for you. Thanks, but there is no need for that, it is what it is….. Sometimes life hands you things you just can’t change and you just have to deal with it. Being diagnosed with some form of a chronic illness is no different. I know it seems like living with Lupus and chronic pain sucks and many days it does, but it’s no different than living with anything else. It is a PART of me, but it is not ALL of me. Just like being married is part of you, or being a mother. Yes, it’s a little different, but it’s also the same.
We all have heard the saying, “A picture is worth a thousand words.” This is absolutely true. I have learned that as someone with a chronic illness, to look deeper than the surface that is presented. The smile that is flashed for Instagram or Facebook. If you look behind the smile and examine the eyes, wonder what is deeper and look you see a deeper story and not the facade presented to the world.
I’ve been following Rachel Hollis and Sadie’s Jane Sabin lately on social media and they talk a lot about living your life with intention. More than that, living each day with intention. As I listened I thought sure I life with intention, we all do. But do we? Do we really live each day with intention? Do we get up each morning and have a true plan for that day, knowing exactly what we want out of that day? Or do we get up thinking it would be nice if something happened, but having no real plan of of how to get there? I can’t speak for you or anyone else but for me on most days it’s the later.
I recently received the book “Salt In My Soul An Unfinished Life” By Mallory Smith.** Through the course of the book Mallory shares about her life with Cystic Fibrosis, and so, so much more. When I got it, I’ll be honest, I wasn’t thrilled to read it. I assumed it would be the typical story about someones foghtbfor their life, with the sappy ending that we see so many times. But that could not be further from the truth. The book is a compilation of the journal that Mallory kept during the last years of her life, that her mother put together into a book following her passing, at her request. The book takes you through the most important times in Mallory’s life while she fights for life with Cystic Fibrosis.
Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger and their health.
This week we meet Maggie, she has a multitude of chronic condition including the condition we will highlight this week: Coronary Artery Disease
Before we get into Maggie’s interview let’s take just a second to look at Coronary Artery Disease.
Coronary Heart Disease (CAD) is the most common type of heart disease and is the leading cause of death in the United States in both men and women.
I have been compiling a list of must-have items that I have recently ordered from Amazon. They are items that have truly made a difference in my life, for the better. These are not just things that I have ordered and enjoyed, these are things that have in one way or another impacted my everyday life for the best. We all know that sometimes the little things mean the most when it comes to our everyday lives when living with a chronic illness. So I decided to share my favorite most recent purchases with you. I hope you enjoy!
Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger and their health.
This week we will meet Kristi!
Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies
I am a happy person who has an amazing life. The early years were difficult, but I did not really understand why until I was nearly 55 years old. I have been married for almost 40 years to my best friend, lover, life partner. We have two grown daughters who are also my dear friends. We love living in Maine but look forward when we will have a warmer-weather winter home. My hobbies beyond being with my family and helping others are writing, dancing and being outdoors (particularly summer fresh-water sports).
