Awareness

A New Way to Look At Feb 14th…..Aka National Donor Day

We all know February 14th to be Valentines Day, the day of love and the day to celebrate the ones we love.  But to many it is a day to celebrate something much different. February 14th is not only a day to show your loved ones how much you love them, it is also a day to talk about organ donation.  February 14th is National Organ Donor Day. Which for some is different way to share love. That being said,Read More

Finding Self Acceptance

In general a person’s feeling of belonging starts with self acceptance! In fact a person’s level of belonging, can never be greater than your level of acceptance. This helps you to believe that you’re enough and also gives you the courage to be authentic, vulnerable, and imperfect! Finding a feeling of belonging is hard and sometimes almost impossible until you can find a way to accept yourself. But how does one go about finding self-acceptance!?!? Since this is an issuesRead More

How Having a Routine Can Be Beneficial

Are you one of those people who need a routine in your life?!? Do you plan out your day, every day? Do you obsess about making sure you accomplish everything on your list?!? I used to be one of those people. Especially when I was working, I would plan out my day at work and then plan my week around the things I needed to get done. But since I’ve gotten sick my routines have gone out the window!! IRead More

Is It The Cold or The Flu?!?!

January 5, 2018 Awareness, Illness, Uncategorized

Let’s talk about the topic that seems to be on everyone’s mind. Colds and the flu. Not the stomach bug you might pick up, but the big bad bug. INFLUENZA!! This is a dangerous bug for those of us who are immune-suppressed/immunocompromised. Where a normal person might only be down for a few days, those of us who have Auto-Immune diseases could be down for weeks. Or even end up hospitalized and critically ill. So it’s nothing to mess aroundRead More

Depression….5 Tips for Overcoming

Depression is real! Not just for those who are chronically ill but also for those who aren’t! This time of year is especially bad for depression because it’s cold and you don’t want to go out. And if you are chronically ill you don’t get to go out as often because of all the cold and flu going around. Especially this year with the flu shot being approximated to be only 10% effective. So what can we do to handleRead More

The Things We Should Never Take For Granted

December 6, 2017 Anxiety, Awareness, depression

Have you ever really stopped to think about all the things you do, places you go, activities you participate in on any given day or week?!? Okay so now you are thinking. Now make a list, list everything you do that takes physical ability, everything you do that, which allows you to have freedom (leaving the house on your own, whether it be on foot, on a bicycle or by car). And everything that requires mental capabilities! Now you thinkRead More

Unrest – Movie Review

November 18, 2017 Awareness, Diagnosis, Product Reviews

This week I was contacted by Jennifer Brea about a movie she has done about living with ME/CFS. She asked if I would be willing to Screen the movie she had produced and then review it here. After looking into the Project I decided that I would be glad to preview the movie and provide a review of the project for all to read. Unrest is centered around Jennifer Brea and her fight against Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), mostRead More

5 Quick Tips to Avoid Illness During Cold and Flu Season

Yes, it may be fall and almost the holiday season. But with those wonderful things also come the bad! Bad for immunocompromised individuals that is. What am I talking about you might ask?!? Cold and Flu season!! For those of us with little to no immune system this can be the worst time of year. As all the germs running rampant make it hard for us to leave the house!! But there are steps we can take to try toRead More

10 Ways to Survive The Holidays With Lupus

We’ve made it through Halloween and it’s almost the holiday season again. For most it’s a joyful time, but for those with chronic illnesses it can be quite the opposite. It can become a time of worry and planning. Planning how to make it through all the parties, the cooking, the crowds etc. A time of worry about the germs we will be exposed to, if we will get sick, when we can squeeze in naps, and how far inRead More

Medical Research with Antidote

Medical Research is a topic I know I can’t be the only one interested in. Sadly, when you have chronic illnesses like I do, you hope and pray for medical research to be conducted on your conditions. Without medical research, many of us wouldn’t be able to live the lives that we are living. For me and many other Lupus patients, Benlysta (Belimumab) has given us part of our lives back. Without this med I only have a few GOODRead More

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