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The Ugly Truth About Chronic Illness

The ugly truth…… the lives of people who are chronically ill are often not what you may think. Most suffer a lot more than they are willing to share. We fight something everyday, whether it’s pain or fatigue or just feeling bad overall. And naturally we don’t want to seem like we are always negative. We don’t want to appear like there is nothing good in our life, so often times we hide all the bad and just talk aboutRead More

The Strange Foe and Friend by Amy Nora

May 9, 2018 Awareness, Flare, Illness, Pain, Sleep

When it is 3AM and you are awake for your sixth day straight from painsomnia, it is hard to see anything good or nice in pain.  When you have a chronic disease such as Lupus, Fibro, Rheumatoid Disease, or many of the hundreds of others auto-immune diseases pain is just a part of life that sadly you live with.  Pain is a function that warns us that something is wrong.  It is our body warning us of danger in theRead More

Dear Lupus…..

Dear Lupus, You came into my life with asking, without an invitation. You came in and made it known by all that you were GOING TO BE THE CENTER OF ATTENTION. Who asked you to come? Who asked you to come into my body and take my life away?? I sure as hell didn’t. Looking back you made yourself known and reared your ugly head the first time when I was in highschool. Although no one called you that. TheyRead More

How Many Times Have you Heard, “Just Lose Some Weight”?

If I had a nickel for every time I’ve heard over the course of my life that losing weight would help, I would be a rich rich women by this point in life. Yes, I know that getting to and staying at a healthy weight is important! So is eating the right foods and exercise. But will losing weight really fix some issues? Yes, I’m sure it probably will! But it’s not going to fix everything!! People like to throwRead More

The Spoon Theory, How Spoonies Get Through a Day

When you are sick and really feeling terrible, there is nothing that can be more irritating than when someone says to you, “At least you don’t loo sick!” While they may not mean this as anything but a compliment. In general it is NOT how most with an invisible (chronic) illness will take it. To hear you don’t look sick when you have an illness where your body is attacking itself on the inside but can’t be seen on theRead More

How I Really Feel About…….. Pain

Pain….. is something I deal with daily. And I am guessing that many of you do as well! It has just become a part of our daily lives and something many of us don’t give a second thought to. And most of us would give anything to have one pain free day where nothing hurt at all without having to take a pill to get that way. That being said it has become a BATTLE for some to actually getRead More

Let’s Talk………Leggings

It’s not big news to you if you know me or others who struggle with chronic pain or Fibromyalgia. Or that when we dress, most days it’s purely for comfort. The general rule is that the more tight and uncomfortable the clothes are, the more uncomfortable we will be throughout the day. So yes many times we choose to dress for comfort over fashion. And yes, sometimes that means we look a bit slob like or dare I say lazy.Read More

Let Me Tell You How I Really Feel!!!

December 8, 2017 Pain

Disclaimer: These are my opinions and it’s okay if yours don’t agree! As I lay here feeling as tho I can feel every….single…. part of my body and it all hurts. I decided to look for some inspiration. Something to get me through this trial. I decided why not? None of my other tricks are working. Not even my Gold Standard Go-To’s. Like sitting in a hot bath, I think I’ve used all the hot water in the house! ProbablyRead More

Dysautonomia- The In’s & Outs

October is Dysautonomia Awareness Month. What is Dysautonomia (can also be called Autonomic Dysfunction) you might be asking?? If you look it up you can find all kinds of information. According to Dysautonomia International, dysautonomia is a very broad term that causes a some sort of malfunction of the Autonomic Nervous System(ANS). Let me pause here and explain what what the AND does so you can have a better idea of what problems could arise. The ANS Controls the bodyRead More

Raising Awareness of Invisible Illness 

Invisble illness, invisible disability……. To those who don’t have one, most would assume that it’s in your head. Thus invisible. However, this so far from the truth An Invisible Ilness is an illness that cannot be seen outwardly.  So for instance; Migraines, Lupus, Rheumatoid Arthritis, Kidney Disease, thyroid disease, Heart disease, arthritis, fibromyalgia, Chronic Fatigue Syndrome, or Chronic Pain. This list goes on forever!!  Invisible illnesses could even include mental illnesses. You can’t and most of the time will neverRead More

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