If I were to ask anyone who lives with a chronic health issue to make a list of places that they try to AVOID AT ALL COSTS, I believe could safely bet my monthly salary that their local EMERGENCY ROOM would be at the top that list. Not only because of the absurdly long wait times, and the potential exposure to who knows what kind of disgusting germs that could be floating around. But throughout this article I think you will find help with the ten tips I provide to make your next Emergency Room visit run a little smoother.
It’s been months…….maybe years. You’ve been suffering alone because no one understands what’s been going on. The doctors have been shuffling you back and forth because they don’t know what to do with you. You’ve heard “Well…..maybe it could be this. Or it could be that!” However they are really just grasping at straws and making guesses because no one really has any concrete idea. Until you finally come in contact with that ONE doctor who follows that ONE path and found you a DIAGNOSIS! Which feels like you won the lottery for a bit. But now what??
It seems like no matter what you do these days there is always some expectation that you aren’t living up to. Or someone is shaming you because you aren’t meeting said expectations. As you grow up it’s expected that you graduate high school. Once you do that it is expected that you go to college and graduate and get a good paying job. After you graduate from college you should be getting married and having a baby while maintaining your career.
Today, I stumbled upon a video from a mom who has a son who is on the autism spectrum, and has been for many years. She was talking about an email she had recently received from a mom who was in the thick of a new diagnosis. Her child was recently diagnosed and the mom was struggling, as most people do when they receive the diagnosis of a chronic condition. She asked the seasoned mom if it gets better. She wanted to know if life gets easier at some point. As I watched this woman explain her answer it made me think about how I would answer this question if I was asked. What would I say to someone who was newly diagnosed as someone who has lived with a chronic illness for seven years?