Whew…….it’s been awhile since I found myself sitting here looking at this blank screen and blinking cursor. I won’t lie and say I haven’t been writing because I have. Just not with the intention of writing to you! Those who read The World Sees Normal. If I am being brutally honest, I haven’t had the drive nor the energy to write here. As thing with covid ramped up locally we had a big tough situation come up within the family. So all my focus and attention went there.
Let’s be honest, the last few months of life have felt like everything has been a chaotic mess. I know I can’t say that this is only the case for me. In fact I would go out on and limb and say that many of you feel the same way. Am I right? It just seems like life has been a LOT. On their own the issues we have been dealing with in our family have been so stressful. Honestly, I’m spent for the rest of the year. Moving my sweet grandma into an assisted living when she was dead set on not going hurt on every level.
Then there’s covid. I don’t even know what to say on this because everyone’s own opinions matter. Even those who don’t agree. But man. It’s been hard. I am at such high risk that I have been told by at least three providers that I am under no circumstances to go out in public. The only time I go anywhere is to the dr, or other health related programs. I’ve been in this house for SIX months. I did break once and ran in to Walmart to look for a walker. They didn’t have any and I went right back out.
Am I taking quarantine too far? No I don’t think so. Because I take a couple medications that drastically lower my immune system. I take them to treat my lupus which also, you guessed it, lowers my immune system. So no, I don’t think I am taking it too far. The word “it could kill you!” Came out of my doctor’s mouth, so I just stay at home.
If you have a chronic disease I think you would agree. But if you don’t it’s probably a whole different point of view. But that’s now why I am here. I’m here just to give you a little life update before we jump back to regularly scheduled programming.
Sadly, due to all the stress related to the stuff happening with moving my grandma, I have been in a giant flare for weeks. The medication I take for pain rarely takes it all away anymore. My back, hips and hands are the worst. Which makes being upright or sitting for any length pretty difficult. I also learned earlier this month that my eyes were showing early signs of toxicity, so It was pulled from my many drugs I take daily.
I see the dr Tuesday and I am praying that we can change some things or come up with a different idea in place of the plaquenil. But who knows.
Now that I am back I have lots of ideas that I want to cover. If you can think of anything you’d like to see me write about please comment below or send me an email. I want to make sure I’m talking about things you want to read about. But for now, this is it!