It’s been months…….maybe years. You’ve been suffering alone because no one understands what’s been going on. The doctors have been shuffling you back and forth because they don’t know what to do with you. You’ve heard “Well…..maybe it could be this. Or it could be that!” However they are really just grasping at straws and making guesses because no one really has any concrete idea. Until you finally come in contact with that ONE doctor who follows that ONE path and found you a DIAGNOSIS! Which feels like you won the lottery for a bit. But now what??
chronic
Focus On The Fight | Epilepsy
Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.
This week we meet Christalle, and we will highlight: EPILEPSY
Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!
Christalle Bodiford is an artist, writer, and adventure seeker. As an entrepreneur diagnosed with epilepsy, Christalle brings a unique perspective of empowerment that inspires others to embrace a positive mindset and live with purpose. When she’s not writing or advocating, Christalle enjoys puppy snuggles with her scruffy terrier and outdoor adventures with her husband.
Chronic Pain | Help Others Help You
Pain is just that, PAIN. It’s hurtful. Millions of people deal with some kind of pain every single day. Whether it be the acute pain of an injury, or the emotional pain of losing someone you loved so dearly. Pain is everywhere and every single person is going to deal with their pain differently.
Focus On The Fight | Psoriatic Arthritis
Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.
This week we meet Vickie, and we will highlight: Psoriatic Arthritis (PA)
Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!
I am married with two grown sons and a five year old grandson. My favorite hobbies are reading and fishing.
What Chronic Illness (en) have you been diagnosed with? Which one will you focus on today?
I have psoriasis and psoriatic arthritis
Focus On The Fight | Hereditary Lymphedema
Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.
This week we meet Jordyn, and we will highlight: Hereditary Lymphedema aka Primary Lymphedema.
Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!
I love to cuddle my service dog, read books, blog, crochet, share my story online, and talk to my friends. I also especially love to garden when it’s summertime.
What Chronic Illness (es) have you been diagnosed with? Which one will you focus on today?
Hereditary Lymphedema Erythromelalgia Ehlers Danlos Syndrome Type 3 Chronic Fatigue Postural Syndrome Orthostatic Tachycardia Syndrome Polycystic Ovarian Syndrome Daily Migraines Asthma MTHFR mutation. Today I will be focusing on my Hereditary Lymphedema.
Grieving Chronic Illness
Grief is an interesting emotion that can be felt for any number of reasons. To most people, grief is associated with the loss of a loved one, or the loss of a marriage or relationship. Most wouldn’t think that one would grieve what they’ve had to give up. Or the loss of a life once lived. But that’s exactly what I think of when I think of grief. I think about the fact that I am mourning the life I once lived and the goals I once had. The life I had before Chronic illness rocked my life.
Focus On The Fight | Fibromyalgia
Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.
This week we meet Melissa, and we will highlight: Fibromyalgia .
Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!
I started to grow my own food as a hobby. I enjoy playing with my dog Toby, watching TV and reading science related books.
Look Behind The Smile….
We all have heard the saying, “A picture is worth a thousand words.” This is absolutely true. I have learned that as someone with a chronic illness, to look deeper than the surface that is presented. The smile that is flashed for Instagram or Facebook. If you look behind the smile and examine the eyes, wonder what is deeper and look you see a deeper story and not the facade presented to the world.
Salt In My Soul: An Unfinished Life | Book Review
I recently received the book “Salt In My Soul An Unfinished Life” By Mallory Smith.** Through the course of the book Mallory shares about her life with Cystic Fibrosis, and so, so much more. When I got it, I’ll be honest, I wasn’t thrilled to read it. I assumed it would be the typical story about someones foghtbfor their life, with the sappy ending that we see so many times. But that could not be further from the truth. The book is a compilation of the journal that Mallory kept during the last years of her life, that her mother put together into a book following her passing, at her request. The book takes you through the most important times in Mallory’s life while she fights for life with Cystic Fibrosis.
Disability Blogger Award
I have graciously been nominated for the Disability Blogger Award by Jordyn from Chronically Unimaginable. I was notified by her on one of my recent posts. Thank you so much Jordyn, this means the world to me! This is an award of recognition to those blogging in the chronic illness, mental health, disability, and special needs communities. The person responsible for starting this is Georgina from www.chronillicles.com. She decided to invent this honor because of the lack of recognition present in these communities today. What a beautiful notion, don’t you think?
