Illness

The Strange Foe and Friend by Amy Nora

May 9, 2018 Awareness, Flare, Illness, Pain, Sleep

When it is 3AM and you are awake for your sixth day straight from painsomnia, it is hard to see anything good or nice in pain.  When you have a chronic disease such as Lupus, Fibro, Rheumatoid Disease, or many of the hundreds of others auto-immune diseases pain is just a part of life that sadly you live with.  Pain is a function that warns us that something is wrong.  It is our body warning us of danger in theRead More

Dear Lupus…..

Dear Lupus, You came into my life with asking, without an invitation. You came in and made it known by all that you were GOING TO BE THE CENTER OF ATTENTION. Who asked you to come? Who asked you to come into my body and take my life away?? I sure as hell didn’t. Looking back you made yourself known and reared your ugly head the first time when I was in highschool. Although no one called you that. TheyRead More

The Things I Wish Someone Would Have Told Me

Even though I’ve been diagnosed with Lupus, Fibromyalgia, and Endometriosis there are still things I come across that I wish someone would have told me about. You all know what I’m talking about, those little “tricks of the trade” that people who have been dealing with that condition for awhile and no one shares with the newbie. So after having a discussion with several people across several different groups, I have complied a list of things by asking others whoRead More

Is It The Cold or The Flu?!?!

January 5, 2018 Awareness, Illness, Uncategorized

Let’s talk about the topic that seems to be on everyone’s mind. Colds and the flu. Not the stomach bug you might pick up, but the big bad bug. INFLUENZA!! This is a dangerous bug for those of us who are immune-suppressed/immunocompromised. Where a normal person might only be down for a few days, those of us who have Auto-Immune diseases could be down for weeks. Or even end up hospitalized and critically ill. So it’s nothing to mess aroundRead More

Tips on Treatments for Migraines.

I by no means am an Expert on Migraines. But I do feel that I know quite a bit about treatment options for migraines as I have tried just about EVERY treatment known to man to get rid of mine. So today I will talk about possible treatment modalities for migraines, oddly enough while suffering from one of the worst migraines I have had in the last few weeks. But our world goes on right? From having so many IRead More

5 Quick Tips to Avoid Illness During Cold and Flu Season

Yes, it may be fall and almost the holiday season. But with those wonderful things also come the bad! Bad for immunocompromised individuals that is. What am I talking about you might ask?!? Cold and Flu season!! For those of us with little to no immune system this can be the worst time of year. As all the germs running rampant make it hard for us to leave the house!! But there are steps we can take to try toRead More

10 Ways to Survive The Holidays With Lupus

We’ve made it through Halloween and it’s almost the holiday season again. For most it’s a joyful time, but for those with chronic illnesses it can be quite the opposite. It can become a time of worry and planning. Planning how to make it through all the parties, the cooking, the crowds etc. A time of worry about the germs we will be exposed to, if we will get sick, when we can squeeze in naps, and how far inRead More

Epilepsy, The System Shocker

What is the first thing you think of when you hear the word “Epilepsy?” What about “Seizure?” Normally, people think of someone on the floor convulsing. What they do not realize is that there are over 40 different types of seizures; some of these you will never know the person is having that seizure unless you know exactly what to look for. Unfortunately, that person will know and feel the after affects for sometimes and hour or days to comeRead More

Raising Awareness of Invisible Illness 

Invisble illness, invisible disability……. To those who don’t have one, most would assume that it’s in your head. Thus invisible. However, this so far from the truth An Invisible Ilness is an illness that cannot be seen outwardly.  So for instance; Migraines, Lupus, Rheumatoid Arthritis, Kidney Disease, thyroid disease, Heart disease, arthritis, fibromyalgia, Chronic Fatigue Syndrome, or Chronic Pain. This list goes on forever!!  Invisible illnesses could even include mental illnesses. You can’t and most of the time will neverRead More

Living vs Surviving 

You know the question….. We’ve all asked it, and all thought carefully about how to answer. The question is nothing life altering to most and seems simple enough. But to many the answer is FAR from simple. Now you are probably wondering what question I might be speaking of. Well….. the common probably the most common and generic question asked, “How are you?”     To most that’s not a big question and gets a simple answer of “Okay,” orRead More

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