My Top Ten Must Have Items For Living With A Chronic Illness

I don’t know about you, but I am really bad about taking time to care for myself. Or spending money on things that will benefit me. I often put others needs before mine and that is something I’ve always done that. Until recently, when I realized that my needs truly need to come before others and I need to do more to take care of myself and not just symptom management and doing only what I feel like doing. So I won’t usually take the time or spend the money to take care of me outside of what has to be done daily just to function. Sometimes it will really take a reminder to spend some time taking care of my skin and and body outside of my daily routines. I assume that others are like me as well. Over the last year I’ve actually been taking the time and spending the money to take care of me. So I decided to share some of my favorite products that I think others with Chronic Illness/Chronic Pain should have on hand and would enjoy.

Bath Bombs/Epsom Salt

One of the things I have found that I enjoy and can be both beneficial and a way to pamper myself is a good hot bath. So I wanted to tell you about a couple of my favorite items I use in the bath.

1. One of my FAVORITE things is to take a HOT bath. So the first thing on my MUST HAVE list is a good Bath Bomb. Most of my bath bombs come from an Etsy shop called “ThisLittleLymeOfMine.” Her products are not only aesthetically pleasing, they also have healing properties. She uses Himalayan Pink and Dead Sea Salt to make her products, both of which are known to have a healing properties. One reason that I like to support this shop is because it is owned and run by a fellow Spoonie. She is currently running a special for those who use the code 5OFF15, which will get you $5 off a $15 purchase. You can visit her shop by clicking on the link above.

2. Another must have in my opinion is a good EPSOM SALT! I’ve tried out many different kinds of Epsom salt throughout the years. And my most favorite is Relief MD Lavender Epsom Salt. I use this a lot at night due to its calming properties. Lavender is known to help one sleep, and the magnesium in the product helps to soothe sore and tired muscles and joints! I have found this in stores local to me but it can also be found on amazon. The link above will take you to the product on Amazon.

Skin Care

The older I get the more I realize just how important taking care of your skin really is. And not just the skin in your face, we need to take care of all our skin. We only get one face so we have to take care of it. I’ve been looking for some good skin products over the last few years and the following are the best I have found.

3. The next thing I want to share is lotion, because I have been having some major skin issues due to my illnesses. And I know I am not alone in this. Many with chronic illnesses will deal with skin issues. So I felt it important to share a good product with all of you. Recently, I have really been liking the Jergens Wet Skin Lotion! One of my favorite things about this lotion is that you can put it on your skin while it’s still wet and you don’t feel slimey. When it dries my skin feels so soft and nice!! By clicking the link above or looking at the picture below you will see that if comes on amazon in several size and quantity options, and 5 scents. My favorite is the coconut, it reminds me of being in a beach with a drink in my hand!!

4. Another line of products I’ve been loving is the Senegence Skin Care Line. (And no this is not a shameless plug because I sell them! I truly love them and that’s why I’m sharing!) I use the whole normal to dry line which includes a cleanser, a day moisturizer and a night moisturizer, as well as some other products. Including a polishing exfoliator. Even though I have some major skin issues on my face as of late due to my lupus this line has significantly helped those issues. My skin is much more even and much less red. The dark circle treatment has done wonders as well. You can see before and after pictures below. And if you want anymore information on the skin care products I use just click the link above.

Heat Products

One of the non-pharmacological ways I’ve found to deal with my pain is by using heat! That’s why I want to share my two most favorite heating devices.

5. When struggling with chronic pain a good HEATING PAD is essential. Over the last few years I’ve tried many different heating pads. Most of which didn’t hold up to frequent use. I just got the best Heating Pad I’ve ever had. They have a couple different size and color options for this pad. The things that I like about this specific heating pad is that it’s made more like a heated blanket. This particular product isn’t like the older ones where the cover and the pad are separate, and over time the heating pad gets misshapen and doesn’t fit in the cover. Another positive thing about this pad is that you have options of how long you want the pad to be on before it shuts off. You have the option of a two-hour timer or no automatic shut off. Another benefit is the automatic shutoff. I also like that the temperature can be set anywhere between 1 and 6. Not like the older models where you got not hot, really hot and way to hot!

6. Heated blankets are simply a MUST when you have chronic pain!! There are different sizes and options for these blankets. I have one that’s a heated throw that’s nice for cuddling up on the couch. And one that is queen sized and stays on my bed. All of my heated blankets have been made by Sunbeam. My all time favorite is the Sunbeam Dual Control Heated Blanket. One thing I like the most about this blanket is that there are dual controls so if you were sharing the bed with a significant other you can each set your own temperature. And there is a wide array of temperature options. My other favorite thing about this exact blanket is that you can preheat it. I like to turn on the preheat function about 10 minutes before I get into bed so it’s ready for me when I’m ready. When you are ready to buy this kind of blanket you should watch the prices. Certain times of year (usually during the holiday season) the blankets will drop in price. .

Sleep

Sleep is so important when you are chronically ill. Yet it is often one of the biggest problems we deal with. I have found a few items that have significantly helped me in my battle of with poor sleep.

7. One of my favorite ways to pamper myself is by putting my super soft sheets and fleece blankets on the bed. The ones I currently have are T-shirt sheets . They feel exactly like your favorite soft T-shirt. In my opinion there is nothing better than getting into a clean, super soft, set of sheets! The particular sheets that I have and are pictured below will come in 9 different colors so you should be able to find ones to fit your bedroom decor!

8. A good BODY PILLOW is a must! When you deal with chronic pain of any kind or insomnia good pillows are important. Especially a body pillow because it helps you to find THAT spot that is often very hard to find! When you look them up you will find that they are called maternity pillow because of the shape. My body pillow is a maternity pillow, but has really helped me sleep and I have less nights of insomnia since I got this pillow.

9. Anyone who struggles with migraines, light sensitivity or even insomnia needs a good Sleep Mask. Like many other items on this list I have tried MANY different sleep masks over the course of several years. Things you should look for in a sleep Mask is that it truly blocks all light and is the correct size and will fit your face. Like many other products, you get what you pay for, and that’s the same with sleep masks. The cheapest is usually not the best. But you also don’t need the most expensive. Just try a few and find what you like. The product linked above and shown below is one of my favorites

Miscellaneous Items

10. I think all ladies (and men I suppose) should have a good foot spa! This spa is the one I have and I really enjoy using when my feet hurt! It’s also fun to use for a girls night in! I used it a lot more when I was working and had been on my feet a lot. But you can really use it anytime. It comes with interchangeable pieces that can be used for massage or scraping the dead skin off your foot. Any spa would be good. The one I linked is simply the one I have.

These are just a few of my favorite MUST HAVES that I discovered over the last few years. The items I mentioned and linked are good for all people and can be used by anyone. But they are all very beneficial to those dealing with a chronic illness or chronic pain. These days any product I find that will make my life easier is going to be high on my list of necessity and to share with other. I feel like we all need to support and help each other, one way to do that is to share the things we have found in life that make things easier. I hope my list will help one of you and possibly make part of your life a little better or a little easier. If you have any questions about any of the products please just leave them in the comments for me.

With Love,

Amber

SENEGENCE Skin Care Review

Skin Care….. what is the first thing that pops in your head when you hear (or read)?! For me it’s the thought of how expensive really good skin care (and makeup as well) is going to be. But the saying that you get what you pay for is TOTALLY true! When you buy and use the over the counter (in most cases) or drug store products you truly are getting what you pay for. In general cases using drug store makeup &/or skincare product, will not help you reach the goal of having a clear complexion and no blemishes. I know it’s possible for some. But most women would agree with me when I say that any item you buy cheap skincare you get a “cheaper” benefits.

Up until about a year ago I was the person who felt like the cheaper the better (for my pocketbook anyway). But that all changed when I found Senegence Skin Care. I saw the price and was like this must work miracles for the price. I went ahead and put those thoughts to the back and started using the skin care line. I started slow and just bought the 3~in~1 normal to dry skin care and the daytime moisturizer. I figured that was a good place to stop and should wait a little bit so my skin didn’t freak out! I got into the routine and started using both morning and evening, by a month later I was seeing some MAJOR difference. You can see in the pictures.

In the picture on the left you can see how uneven my skin tone was and it’s hard to see but I have a few small pimples and chin. The right was taken about 10 days following the regimen of using the products two time a day!! I know use Senegence entire skin care line. And I can’t say enough good things about it. You can see in the photos below how well it has worked for others as well.

After looking at my before and after pictures I knew I had found my product! Before using the OTC products my skin was uneven and the tone wasn’t consistent. My younger sister has started using the skin care product line as well and it has completely changed her skin. She used to constantly be breaking out and now she only breaks out occasions and usually because she has been eating chocolate or is really stressed.

The saying “You get what you pay for !” as I mentioned above is really true when it comes to Makeup and skincare. Most products you buy over the counter are not going to be good for your skin. I’m not saying they are all bad but most wont do what you need them to do. If you use over the counter products I recommend doing your research and figuring out which products are going to be the best for your skin!! You only get one face so protect it and use good products so it will be nice looking and feeling for your entire life!! If you have any questions about what the skin care line let me know.

With Love,

Amber

How Many Times Have you Heard, “Just Lose Some Weight”?

If I had a nickel for every time I’ve heard over the course of my life that losing weight would help, I would be a rich rich women by this point in life. Yes, I know that getting to and staying at a healthy weight is important! So is eating the right foods and exercise. But in the long run will losing weight really fix or cure your health issues? Yes, I’m sure it probably will help some. But it’s not going to fix everything!! People like to throw that comment out for every issue. Oh you have headaches, lose some weight! Oh you have IBS, lose some weight! Oh you aren’t having any luck dating, lose some weight. Oh you’re having problems getting pregnant, lose some weight. I assume in the majority of cases people truly do not mean to be a Debby downer by telling others this. But they also probably have no idea how it feels to hear that from people you loved and respect, and expect some sensitivity from. If you’ve never struggled with your weight you have no idea how it feels for a friend or family member to direct those three words at you. “LOSE SOME WEIGHT!”

As a person who has struggled with my weight since High School I understand what a touchy topic this can be. I look back at my teen years and would give anything to be back at that weight now. But sadly that Amber was about 40lbs ago. But I didn’t just get fat due to poor choices and lack of proper food, just like many other chronically ill. Most of us probably took the DEVIL drug, aka Prednisone. Yes, prednisone fixes many many things. But it is also known to cause weight gain due to the cravings many deal with while taking the medication! And not like 3lbs weight gain. We are talking like 25, 50, 75 lbs. And it came on FAST. Your symptoms are mostly gone but now you got all the bonus weight. Sigh. The weight no one wants.

But it’s not just Prednisone that causes weight gain. Hormones often used for birth control can also cause weight gain, as well as Lyrica which is used to treat fibromyalgia! There are many many more that can cause weight gain. The point I’m trying to make here is that every over weight person you see did not just sit on the couch eating chips and watching Netflix all day! Even though that is what people automatically assumes, it is not always the case.

Did anyone think that maybe those of us who gained weight while on Prednisone might deal with a LOT of daily pain or extreme exhaustion!?!? Have you ever lived with so much widespread pain that literally every joint, bone and muscles hurt so bad that it’s torture even getting out of bed. Much less taking a walk or going to the gym. Does anyone consider the fact that many of us who are over weight can’t stand the way we look and can’t look at ourselves in the mirror. Many of us who have gained weight due to medical conditions or medications never asked for this. We didn’t just give up on ourselves and sit and eat chocolate all day. We got sick!!! And because of that many have taken medications that can cause rapid weight gain that doesn’t come off easily.

There are also those in the chronically ill community that gained weight because of the pain. They may have not felt like being the most active person. Every step, every tiny movement make your whole bodg ache. Then when someone throws out the “just lose some weight,” comment and you just wish they could live in your shoes for 24 hours so they know what’s it’s like. It’s honestly really hard to do anything at times, even low impact exercise can hurt! So what I am saying is when you already hurt in places you didn’t know could hurt the last thing you want to do is “hit the gym!”

If you really think you are giving offering up some groundbreaking piece of advice to work out and eat healthy. YOU ARE NOT! We’ve heard it from family and friends and even the doctors. I will admit the best I’ve ever felt was when I wasn’t walking in the morning before it got hot and ate a diet low on gluten. (gluten has been found to mess with inflammation in everyone.) It just wreaks havoc with the chronically ill. But let’s be honest eating healthy can be really expensive! And no that’s not a cop-out, but if you have ever tried to eat a gluten free diet, it’s hard at first and it’s expensive. And let’s be honest until you are ready to make a big change it isn’t going to happen. We are the only ones who can decide that we need to change the way we eat &/or our activity level. No one else can do it for us.

I guess the takeaway from my rant and rambling is that I wish people would work on their delivery. If you are kind and truly concerned about my wellbeing, I’m going to be more apt to listen to you. More than I will listen to the person who just tells me I’m fat and I need to lose weight. It’s not a surprise I know what I look like. I understand that research shows “When patients lose 5-29 percent of their body weight, the symptoms of chronic Conditions will improve!”Per the Cleveland Clinic. I know this but sometimes just getting your body moving and making that first move is the hardest part.

Depression, My Story. By Kayla Aiken

Depression has many faces, and can look many different ways! It’s not always the person that we picture in our minds, or saw on TV. Someone who is so down that they can’t get out of bed or complete their daily tasks. It can look like your best friend who is working and going to school full time and has become very good at hiding her secrets.

This year through a mutual friend I was lucky enough to be introduced to Kayla. I’m really just getting to know her. That being said since the first time we interacted she has always been very open about her battle with depression. Since she is so open and willing to share I asked if she would be willing to tell her story here! Thankfully she agreed. Below is Kayla Aiken’s story, her story of how depression impacts her life.

When I woke up today, I found myself on the couch barely able to open my eyes. I reached for my phone to see what time it was. 10:07 AM. At this point, I had slept 23 hours since the morning before, and I went back to sleep an additional four hours before waking up to even eat something. This is a very minimal depiction of what depression looks like. My doctor calls it “leaden paralysis”, a symptom of Major Depressive Disorder, Atypical in subtype. It’s where your entire body feels like lead. Your arms are so heavy it feels as though you can’t lift them. Your legs are leaden and making it up stairs is a struggle. This is mental illness. My diagnoses include the previously mentioned MDD, severe, recurrent, and atypical, PTSD, Generalized Anxiety Disorder, and an Eating Disorder.

My story starts here: I graduated nursing school in May of 2010. After four years of nursing in the same location, I decided to become a travel nurse. I traveled in Oklahoma, Connecticut, and Missouri. I was in Connecticut in 2015 and started to feel sort of “blues-ish”. I thought it was just because of the weather. So, I came home to Missouri in March and by the Fall of 2015 I was a worried, depressed, and anxious mess. I couldn’t take my dog outside without my gun on my side or maise in my hand. I packed food and put it in the trunk for my drives back and forth to work just in case we got hit with a nuclear bomb or an EMP…etc. My hands would shake uncontrollably at times and I couldn’t eat anything. I went on a cruise in October of 2015, but I didn’t even enjoy it to it’s fullest because I was so concerned that the ship was going to sink or we were going to get stranded on some island we visited. My anxiety was out of control.

In January of 2016, I saw my doctor for the anxiety. He asked me if I was depressed, also, but I denied it being an issue. But, it was. It was a major issue. I called in a couple of weeks and said, “Oh, I think I am struggling with depression, too, so if I could get something for that…” He prescribed Prozac, but it put me to sleep for a week; so, we made the switch to Effexor. Between the medication for anxiety and the Effexor, I started to feel a little more normal again around the March/April months of 2016.

By the fall of 2016, I started to feel as though the Effexor was no longer working. I was driving back and forth to work envisioning myself driving off the road into a ravine, or seeing myself take my gun in my hand and put it to my head or my heart, or taking all the pills in my medicine cabinet. I was so mentally ill. So, so ill. I was losing friendships, my family relationships were strained, and I was calling off work more frequently than I could afford. I was faking fine so well, that only my closest friend really recognized how mentally ill I was.

I think it was in November of 2016 that we found out my Dad had been having an affair. And then my extended family and I had a big blowout over Christmas 2016. Two major stressors in a short amount of time.

In January of 2017, I went back to my physician and brought my best friend along to help me stay honest. I told him, very fearfully, that I was having suicidal ideations and that my depression was out of hand. He changed my medications up a little bit, and sent me on my way. The medications did not work. In February, I found out that my two younger sisters had been sexually assaulted by an older boy cousin. It infuriated me. It destroyed me. And, I had no idea what I could do about it; because my sisters are adults now and will deal with it the way that they want to. But, if it was up to me, I would have him and everyone else who was involved put on trial for such a heinous crime.

March of 2017 rolled around and I flew to San Diego for a conference, still so very sick, and losing hope by the minute. I was driving home from St. Louis from the conference, and tears rolled down my face until my eyes were nearly swollen shut and physically ached. What was I going to do? I couldn’t live like this.

A few weeks later, on April 3rd, I delivered my 14th baby during my midwife clinical. I drove home later, took a shower, and curled my hair. I was going to dress and do my makeup despite feeling so depressed. I went to a 12-step meeting, and when I got in my car I just had this feeling of “I cannot do this”. I called a friend, and she was cooking dinner, so I let her go. I went home, I played piano, I journaled, I watched TV, and nothing was working.

So, the evening of April 3rd, 2017, I took approximately 140mg of Ambien. My standard dose was 5mg nightly. I won’t go into the events of that evening, because it is just a lot. But, I woke up the next day in the local ER to find out I was going to be admitted to the hospital psychiatric unit for a week. It was one of the hardest weeks of my life.

In 2017, I was admitted to hospital psychiatric units four separate times. I spent 3 months in a residential facility in Chicago getting treatment for my depression and other mental illness diagnoses. I met a ton of wonderful people there. People who were also ill, but wanted to get help so much that they stopped their lives to go into a long term inpatient facility to work on their shit. It was liberating, and oh so hard. But, I’m thankful I had the opportunity to do it.

So, where am I now? Still in treatment. Still working on my shit every day. Still focused on getting up out of bed and making myself do things like laundry and dishes and putting gas in my car and getting groceries so I can eat. It’s not easy. Every day is hard. But, every day is a gift. I am trying to see that for the truth that it is.

I feel like all of the above was probably very boring to read, so if you made it this far, thank you! I’d like to take a moment in closing to talk about mental health stigma. I looked like I had it all together. I had recently graduated with my Bachelors in Nursing. I was pursuing my Masters in Midwifery from a prestigious university. I was working full time. I was going to church, maintaining friendships, and seeing my niece and nephew as often as possible. But, inside I was being eaten alive by my demons. Many people who struggle with mental illness do not look like they do. Still to this day, when people find out I struggle with depression, they are shocked. “But you are so personable and bubbly.” they say. I would encourage you to get in deep with those that you are surrounded with on a daily basis. Your family, peers, and coworkers…etc. Ask them how they REALLY are. Ask them about anxiety or depression and whether they have ever struggled with it. Be honest about your own struggle with anxiety and depression with someone who is safe in your life. Find someone safe for yourself, and be someone safe for others. When I attempted suicide in April and July of 2017, it was my closest best friends who intervened and saved my life.

Thank you for reading, and if my story resonates with you and you’d like to reach out, I’ll leave my contact info below. Feel free to reach out if needed.

Kayla Aiken

kaylaaiken@icloud.com

If you are having suicidal feelings or thinking of ways you could end your life, PLEASE reach out to someone you can trust! There is help out there for you!!!

As always with Love,

Amber

The Negative Direction In Which National Healthcare and Insurance is Headed

I am going to apologize for what I am going to say. I have no intention of being offensive but this could potentially be offensive when read by some people. These are my opinions, & written by me. And I’m sorry if I offend anyone as that was not my intention.

Let’s discuss Insurance Companies for a moment. Every year the price we consumers pay seems to go up and up, in a way that many can no longer afford. How is this right?!??? I don’t have a problem paying for my Healthcare, because I was raised to always budget money every week, month, year to cover said insurance. But we are now coming to a point that the cost is becoming astronomical. Due to this people are being put more and more at risk for ending up in life altering debt, Due to the fact that they couldn’t get insurance at an affordable price point, but still needed medical care!!

Why should this be an option? When did it become okay for women, children & the elderly to not have medical coverage?!?! Pregnant women, young children and the elderly are typically the populations that need to be able to get affordable insurance. However, that is simply not always happening. Several years back a law went into affect saying that all had to have insurance or they would owe more on their taxes. Now those with low income have the option to turn down said coverage and get a letter from the government saying they will not be taxed because they applied for insurance but were unable to pay the monthly premiums. How backwards is this.

This month alone I have had two procedures and a Doctors appt for Botox for my migraines denied! Apparently this wonderful insurance co I have had decided that they will okay God. They will make decisions for others care while not taking the time see the whole picture. “Oh it says her lungs have likely become involved due to her lupus, since her doctor has done X-rays why would a CT be needed. Oh look at this back X-ray report that said further testing is needed to confirm diagnosis. Nope, she doesn’t need that either we will just start PT sand hope that her pain that she’s dealt with will just disappear!” The patient and old RN feels like she is going crazy.

The RN in me somewhat understands. I get that they want to save people from having totally unnecessary testing and procedures & costs. If they were being honorable to decrease costs for said patient I could stand behind that.

What I can’t stand behind is these big insurance companies who decide to play GOD. There is only some GOD and I’m pretty sure he’s not in the insurance business. They didn’t ask my drs any further questions to help them the decide if other mode of treatment or diagnosis is possible. They just said NO!!! This insurance issue is getting much to out of control for people with chronic illnesses. We are always going to require more medication, more testing and more procedures. It’s just the name of the game. I don’t feel like these big corporations want to take time to figure out what is better for the patient. They just care about what is best for their companies pocketbook!!

In closing, I am super uneasy at the this way healthcare in the United States is going! I like the way it is as headed a few year by requiring affordable for all US citizens. The key word there is AFFORDABLE!! Now in my opinion, Healthcare is heading in a really negative direction. Those of us who have to have insurance should not have to sell my first born, my right kidney, and my great toe to get affordable healthcare. I sure someone in the government has a great idea on how to fix the issue!! Until then, we continue to pay unacceptable premiums.

With Love,

Amber

Why Is Sleep So Important?!?

Sleep…. sleep…..sleep. It’s all my doctors seem to want to talk about these days. I can count on every doctor I see to ask me how I’m sleeping. When I tell them the truth I always get THAT LOOK! A look I’m sure anyone with a chronic illness/pain is used to seeing. Then they proceed to tell me why I need to sleep more. That being said I’ve always wondered how much of a difference sleep really makes. And why it is so much more important for us (the chronically ill and those with chronic pain) than other people. So I decided I would do some research and pass on what I found to you guys!!

The 2015 Sleep in America Poll found that 21% of Americans deal with chronic pain, along with 36% who suffered, in a period recent to the time of survey, from acute pain. That shows that only 43% of the population report being pain free. Pain joins with stress and poor health in general equals poor sleep, shorter duration of sleep and poor sleep quality! The people who suffer from either acute or chronic pain are more likely to have problems sleeping that will impact their daily lives. More than half of the people with chronic pain and were part of the poll say that sleep difficulties have or will interfere with their work. That. Number drops under 25% for those who have no pain. Those with pain also report that lack of sleep often Interferes with their mood, the activities they may take part in, relationships and overall enjoyment of life.

People with chronic pain also feel that they have less control of their sleep, the report that worry more about lack of sleep could affect their health. This group of people also say that they are more likely to have their sleep impacted by environmental factors that make it more difficult to get a good night sleep. These could be things like noise, light, temperature, mattress or even the person who they share the bedroom with. Just to give you an idea the survey indicates that sleep is a significant problem for those with chronic pain. The statistics don’t lie. It showed that almost one in four people with chronic pain (23%) said that they have been diagnosed with some kind of sleep disorder by a dr. That is compared to just six percent of those who don’t have any issues with pain.

These statistics above show what we all know. They show that those with chronic pain issues don’t sleep well. But why is it so important?!? Some doctors feel that the duration and quality of sleep should be considered a vital sign, because both are known to be strong indicators of qualify of life and overall Health. It is recommended that a person gets 7-9 hours of sleep a night. The importance of good sleep should never be underestimated. Sleep deprivation has been clearly linked to increased rates of obesity and increased body fat. Along with a compromise immune system, and even diabetes. Research shows that a full nights sleep (7-9 hours) is essential to help the body repair and rejuvenate. Lack of sleep has been linked to poor performance on the job and very slowed reflexes behind the wheel. A non-restorative sleep pattern can potentially cause diminished energy, depressed moods, fatigue and along with experiencing more pain. That being said new research is showing that getting a full night of sleep can not only help you be more alert and it can also reduce inflammation and pain. Basically the takeaway from this is that sleep deprivation and poor sleep along with chronic pain are part of a vicious cycle, that can be hard to break.

The good news they say, is that sleep deficits can be remedied easily and the effects of lack asleep can be reversed. There are specific ways to improve your sleep hygiene that can give you immediate rewards. The American Sleep Association there are some steps that one can take to make sure that you can get better sleep. These steps are done to help you wake up feeling refreshed and energized for your day!

The following are steps recommended by the American Sleep Association(ASA):

  1. Keep the room cool- In General when we sleep our body temperature drops. So it is recommended that you keep your bedroom around 65 degrees. That is so you can add blankets. The drop in body temp signals your body that is time to sleep!
  2. Go to bed earlier- Just like kiddos, adults can get over tired and won’t be able to fall asleep. Also for those who like to stay up late and sleep fewer hours research has shown that those who keep that as part of their routine oftentimes report more negative thoughts and more pain.
  3. Stay on Schedule- In order to help your body get used to sleep, try to go to bed and get up at the same time. By doing this your body will get used to this rhythm. This making sleep somewhat easier.
  4. No Naps- This is a very debated topic. That being said the ASA says that nap decrease the “sleep debt” that makes it harder to fall asleep at night. So by napping during the day you increase the odds that you will have trouble falling asleep and/or staying asleep!
  5. Turn off screens- Turning off all kinds of sleep a couple hours before bedtime for all ages allows the body and brain to settle down and shift into sleep mode.
  6. Make the bedroom only for sleep and intimacy- In today’s society the bedroom have become multifunctional. It is no longer just for sleep, it is used by some as their office, or a place to workout or a movie theater of sorts. By making your bedroom uni-functional it will make it easier to sleep there. It’s hard to relax and go to sleep when you can see your desk piled high with tasks that need to be completed. By making the bed and bedroom just for sleep one can hope that your brain will subconsciously associate being in the bed or bedroom with being asleep. They also say that one shouldn’t lay in bed and surf their phones, watch TV or even read. They suggest sitting in a chair in the bedroom to do those tasks and crawl into bed only when you are feeling sleepy.
  7. No caffeine or other stimulants after noon – in order to get better sleep it’s best to avoid any caffeinated beverages, cigarettes and alcohol after noon. By doing so it is hoped that your body & mind will be able to wind down and sleep when it’s time for bed.

Let me be real and honestly say I don’t think that this is something easily changed or reversed. As someone who has suffered with insomnia for many years and have made many of these changes through the years. And I just don’t see the great change in my sleep by doing so. That being said these tips may benefit one of you reading this greatly. So I feel like even if it hasn’t helped me I want to share this information with others in hope that it can help someone else. By doing this research I was able to see the dangers that can come from not sleeping. This the importance of getting a good nights sleep every night. So I am willing to make these changes once again and see if it is beneficial to me. I will try the tips listed above for a month or so and report back to you all as to whether or not they have improved my sleep!

Finally take a moment to look at the graphic below. It shows some Interesting information on this topic. Graphic is from the National Sleep Foundation.

With Love,

Amber

Resources

https://www.spine-health.com/wellness/sleep/chronic-pain-and-insomnia-breaking-cycle

Better Sleep Guide

https://www.sleepassociation.org/sleep-disorders-n/insomnia/amp/

Explaining Fibromyalgia in Six Quick Points

Fibromyalgia is a term that has been thrown around for years. For many years the medical profession used Fibromyalgia as a catch all. People who had generalized pain that couldn’t be diagnosed would be given the diagnosis of Fibromyalgia. The medical profession didn’t really seem to understand what caused it, and what could be done to treat it. In the past decade the condition has become much more understood and there are new diagnostic criteria that the patient must meet. I will discuss those shortly. Like many other conditions the more research that is done the more everyone understands it and it can be treated.

1. So what IS Fibromyalgia? The definition for this condition has evolved over the years. For now it is defined as a chronic disorder characterized by widespread musculoskeletal pain, fatigue, and tenderness in localized areas.

2. How many people have Fibromyalgia? Most recent estimates say that there are 3 million cases per year!! According to The National Fibromyalgia Association, Fibromyalgia is one of the most common chronic pain disorders. It is estimated that 10 million people in the U.S. are affected, and an estimated 3-6% of the world population. This condition is normally seen in women, approximately 75-90% affected are women. But it also occurs in men and children of all ethnic backgrounds.

3. What causes Fibromyalgia? Currently researchers are not exactly sure of the cause of FM. That being said more research is being done all the time that is leading in the direction of determining the exact cause. Most agree though that FM is caused by issues with the nervous system. They feel that those with FM will experience amplification of pain due to the abnormal way the nervous system is processing the signal. The newest research is leading in the direction that there may be a genetic predisposition in those who have FM. I expect to see a lot of new information coming on this front in the coming years!

4. What symptoms would a person with Fibromyalgia present with? The main complaints a person with Fibromyalgia usually present with the following: pain, fatigue, and sleep disturbances.

Pain– The pain that comes along with this condition is usually chronic and widespread. It can be felt all throughout the body and may vary in intensity. The pain can be described as stabbing, shooting, aching, throbbing or even as numbness and tingling. Usually people will complain of morning stiffness and abdominal pain until they get stretched out.

Fatigue– The fatigue associated with Fibromyalgia is much, much more than just being tired at the end of the day. This fatigue is an all-encompassing exhaustion that interferes with daily life! It is causes an inability to complete basic tasks.

Trouble Sleeping– Often times many people who have FM also have some sort of a sleep disorder that prevents them from getting a deep, restful, restorative nights sleep! This making the fatigue that much worse!

Cognitive difficulties – Many who suffer from FM will complain of “fibro fog.” Which is also known as brain fog. This is a symptom of fibromyalgia where you feel as though you can not think straight. You may have trouble understanding things, remembering things, or even losing things. All of which can be “normal” with Fibromyalgia. This is a form of cognitive dysfunction that comes and goes with FM.

5. How is Fibromyalgia diagnosed? In 1990 the American College if Rheumatology (ACR) developed classification criteria for diagnosis. The criteria included a history of widespread pain in all four quadrants of the body for a minimum of 3 months prior to diagnosis. It also required that the patient have pain in at least 11 of the 18 designated tender spots. In 2010 the ACR developed new diagnostic criteria that did not rely on evaluation of tender points. Instead focused on the person’s pain being widespread and accompanied with other symptoms like problems sleeping, and fatigue. They also take into account the cognitive issues that the patient may be feeling/dealing with.

6. How is Fibromyalgia treated? In order to effectively treat FM the symptoms need to be treated. Thus treatment is really about symptom management via medications,or other treatment modalities. Medications or other treatments like massage to reduce pain, sleep management and finding ways to lower stress are the main treatment modalities. Exercise and eating healthy, as with most conditions are encouraged to help lower the pain level. A person with FM will also need to discuss the cognitive difficulties they may be having with their provider so a proper treatment plan and recommendations can be made.

This was a quick and dirty way to explain Fibromyalgia, how many people are impacted, the suspected causes of FM, as well as the diagnosis and treatment of the disease. Even with the changes in diagnostic criteria and more research being done, FM is still not fully understood. And treatments often end up being trial by error. One medication/treatment may be prescribed and if that works they will continue it. If not, they will continue down the line trying to figure out what works for each person. And the fact that many will also experience a number of other symptoms and overlapping conditions, like Irritable Bowel Syndrome, Lupus & Arthritis can complicate things. That being said over the last decade the understanding of the disease has increased and they are always working on new medications for treatment of FM. Based on the trends over the last few years it should be expected that there will be big advances in the understanding and treatment of FM. This post just shows more clearly that those who suffer from FM are NOT alone! It also shows that patients need to continue to advocate not only for their own care, and the care of others who can’t advocate for themselves. And more focus needs to pushed through the proper government channels to advocate for more money for research of this condition!

With Love,

Amber

How I Have Dealt With Not Being Able to Have Kids!

March is National Endometriosis Awareness month.

What is Endometriosis??

Endometriosis is a painful condition where the tissue that is normally lining the inside of the uterus (the endometrium) is found growing outside of the uterus. The ovaries Fallopian tubes, and tissues lining your pelvis are commonly involved.

Who and How Many Are Affected?

Research shows that Endometriosis impacts 1 in 10 women who are of reproductive age. It is estimated that endometriosis will cause infertility in 30-40% of those who have the condition. It is believed that 7.5 million American women are affected by this condition. And 176 million women worldwide. Not only do those with Endometriosis have problems with fertility, they also deal with life altering pain that can have an impact on all areas of their lives. Not just their intimate relationship with their partner.

What are the signs and symptoms of Endometriosis?!?!

-Painful Periods- Pelvic pain and cramping along with the possibility of low back and abdominal pain. The pain may begin before your period and extend several days into the period.
-Pain with intercourses
-Pain with bowel movements and urination – most likely experienced during your period
-Excessive bleeding during period
-Infertility
-Other symptoms someone with endo might experience: fatigue, bloating, nausea, diarrhea and constipation.

My Story

Now that I have talked about what Endometriosis is, how many women are affected and the signs and symptoms to watch for. I want to share a little of my Endometriosis story. As far back as I can remember I was always plagued by severe menstraul cramps. I’m not talking the kind of cramps where you can just take a couple Advil and go on. I’m talking about menstrual cramps that left me stuck in bed with a heating pad on my belly and one of those heat patches (see picture below) on my low back. I always bled really heavy and had pain at all points of my cycle, through most of the month when the Endometriosis is at its worst. I also had issues with passing clots during my period for several years. However, I was led to believe that those issues were due to the specific birth control I was on.

I have tried multiple forms of birth control over the years, from
the shot, to the ring, and the patch. As well as many different pills but none of them were really able to regulate my cycle, and make it a “normal” 28 or 30 day cycle. It wasn’t until like 5 years ago when I finally decided my symptoms weren’t normal and I needed to find answers. The first time I went in my doctor felt that i just had bad periods and we needed to try a different oral birth control. However, things couldn’t be okay with the severe pain and bleeding issues I was experiencing. Also an adult women in her twenties should not have cycles that ranged from 10 days to 4 months apart, & everything in between, even while being on birth control. Before that I just assumed I was one of those women who would have painful periods. And that would take. awhile to regulate my cycle. Boy was I wrong.

Finally in 2011, after multiple scans, ultrasounds and dr visits, I made another appountment with my OBGYN. All the scans and testing had never showed that my appendix needed yo be removed, deapite the most intense pain I felt was right in the area of my appendix. At that appt she gave me a couple different options for treatment.

I had THREE OPTIONS

1. Start Depo Provera Shot– I declined this because I gaines 40 pounds the first time I took it. And honestly I just couldn’t deal with more wt gain at that point.

2. I could recieve the Depo Lupron Shot, which essentially throws you into early menopause. It is effective because you would no longer ovulate, which should decrease the pain. I also denied this option because I was only 26 and not ready to be thrown into menopause.

3. My last option was to have a Laparoscopic Surgery which is the only true way to diagnose Endo. It is also a treatment because as they go in and look they also get rid (burn off) of any of the endometrium that was in places it should not be. This is what I chose. I wanted to know we were treating what we thought we were.

If you aren’t knowledgeable on Endometriosis, the only true way to diagnose it is to have a laparoscopic procedure where they put air in your belly and inflate inflate it so they can see everything with a very small camera. I had my first surgery in November of 2011, when she got in there she saw that I did have significant amount of Endometriosis. Which required her to ablate those sites (aka burn off) those spots, and clean out everything she could, in hopes of getting rid of my pain. This is also the procedure that is done for ladies with endometriosis who are having a hard time conceiving, in hopes that it will help them get pregnant and carry a baby to term!

Finally after having my first laparoscopy in 2011 I received the diagnosis of Endometriosis. And was told at that point that it would most likely going to be hard to get pregnant. Over the following year we found out that getting pregnant and carrying a baby was just not going to be much of a risk for me between the Endometriosis and Lupus. It would put me and the baby at much to high of a risk!! This is probably the worst news I’ve ever gotten. Over the last several years I have spent a lot of time crying over not being able to naturally have my own babies. Being a mom has been a goal of mine for as long as I can remember. I never wanted anything more. But I have since come to terms with this issue, and hope to adopt one day. I have always felt a calling to adopt. There are so many babies and kids who are in foster care that need a good mama and aren’t getting adopted. So adoption will most likely be the way I have kids. Even though it’s not how I’ve always planned. Do I still have down days about the fact that I will never carry or deliver my own baby? Yes, and I feel that it is just normal to have sad days and negative feelings as you go through life with multiple chronic illnesses. When your ultimate life plan changes you have to adjust. You can’t just stay on that same path.

For other women who don’t have all the health problems that I do and are able to carry a baby, if they could get pregnant, there are all other options. So, please don’t ever let anyone tell you that just because you have Endo that you can’t have children. Because thats just not the case anymore. There are options like doing fertility treatments like IUI or IVF, or even a surrogate.

Endometriosis is not a condition I would wish on anyone. Not even my worst enemy. I have currently had three endometrial ablations done. I am able to get 18-30 months of little to no pain as long as I stay on Continuous Birth Control to prevent me from Ovulating every month. I will most likely be having surgery this year or next, because it will be two years since my last one in December.

My biggest recommendation for someone who has been newly diagnosed, or to someone who has had the condition for years, is to find a support group or a friend who has the same or similar condition. It doesn’t have to be the typical group, like the one that pops in everyone’s head. It can be one person who understands, maybe a friend or family member who struggles. Or a group on Facebook who deals with PCOS or Endometriosis. This condition is just like any other. You can’t run and hide. You will have times when you need support that in most cases your friends, family and spouse can’t give. Not because they don’t want to, but simply because they haven’t walked that road. The best things we can do for ourself and for others in our place is to find someone who understands the daily struggles, that we can talk to without worrying what they think!! The other thing I always push for with any disease process is to educate yourself. You can’t tell others what’s going on or decide what treatment is best for you if you don’t understand the condition.

Please feel free to share this with anyone you think could use the Information and support.

If you have the time check out the blue hyperlinks throughout the post. They are websites that have good correct information!!

With Love,

Amber

Why Does Weather Make The Pain Worse?

Okay I know I can’t be the only one who’s pain and comfort is impacted by the ever changing weather! And this winter/spring has been the WORST!! In the last two weeks it seems like my pain has been almost constant. I think it’s partially due to the fact that we’ve had 70-80 degree days with thunderstorms that turned into a 30-40 degree day with winter weathe !! Mother Nature sure has been a little confused as of late. I have never totally understood why the weather has such an impact on people with any kind of chronic pain. So I decided I would do a little research and share the information I’ve found!

Weather.com explained it like this, they say that the changes in barometric pressure are what causes the fluctuations in pain for everyone with arthritis, lupus, rheumatoid arthritis & fibromyalgia. Really, anyone who has chronic pain or migraines. It is said that any change in barometric pressure or change in the weight of the air that presses against the surface of the earth can cause headaches and increase joint pain. There have been studies done and published that show that two thirds of people with chronic pain in all parts of the US believes that there is a link in weather changes and increased joint pain and migraines. A study done with 800 Europeans with osteoarthritis found that 67% report that they feel that weather affects their pain!

Like those with chronic pain, migraine sufferers also report that their migraines are linked to weather patterns. It is believed that barometric pressure changes, along with changes in humidity and temperatures could potentially affect the pressure in the brain. Dr Steven Graff-Radford the director of a program for headaches at Cedar-Sinai states “Though the mechanism is somewhat unclear, what is quite clear is that overcast, cloudy and rainy days produce more migraines.” Mayo Clinic says that for some people changes in weather may cause imbalances in chemicals in the brain, including serotonin, which can potentially cause migraines. Allergies are also a big cause of headaches (migraines) this time of year. It’s getting warmer and all the things are blooming. If you have problems with allergies that lead to headache you need to be proactive. By taking antihistamines to help keep the allergies at a minimum. (Of course check with your doctor before taking any over the counter allergie medicines.)

One thing that everyone is sure of is that cold weather makes pain worse. Research has proven that when you are cold, your muscles, tendons, and ligaments tighten and become less flexible. One way to help reduce the pain due to cold weather is to stretch. Stretching will help to loosen those muscles, tendons and ligaments and help to make your body not so stiff and make it easier to move around. Even in days when you don’t feel like being active, doing some sort of exercise is important. Inactivity can actually increase some types of pain.

After doing my research the main things I found is that there is a real link between weather changes and increased pain levels and migraines. It’s great to know that it’s not just me that experiences that! I know that I am not. But sometimes it feels like you are the only one dealing with an issue. The best thing we can do to deal with the increased joint pain is to try and stay active. I know that’s much easier said then done. But especially this time of year when the weather is all over the place, staying active will help to keep you from getting stiff and having more pain. In reality all we can do is hope that Mother Nature settles down and the weather will become more stable.

What You Need to Know About IBS

Irritable Bowel Syndrome……. not a topic that most like to openly discuss. However, for those of us who deal with IBS all the time, it’s something that needs to be better understood! And today is the perfect time to be writing on the topic due to the fact that April is IBS Awareness Month. Spreading awareness is one of the only ways we can help the world to better understand this life altering conditions. People in general don’t understand that it’s not just having periodic abdominal pain, constipation or diarrhea. It really is a condition that impacts many parts of your life, not just your health. Awareness may help to explain to others why we only eat certain food or that you absolutely can’t eat others. And help people around us to understand why you can’t eat out of the house without issues or why you never eat out. Awareness also helps everyone understand and learn a person’s triggers and needs for treatment. Everyone is going to have a different experience with the condition, and the triggers for one person won’t necessarily be the trigger for another. Examples of IBS triggers could be change in routine, or anxiety/nerves or even certain kinds of food. That being said like many other conditions everyone who has IBS will have a different journey and story to tell.

Let’s look at some statistics! Irritable Bowel Syndrome (IBS) is said to be the most common of the functional gastrointestinal (GI) disorder NOT only in the US but also worldwide! And an estimated $1.6 Billion is spent yearly on healthcare for those with the condition. IBS is said to have an estimated prevalence rate of 10-25%. There is such a large range because a lot of people will not seek care for IBS symptoms until it is really impacting their life. According to the Statistics only about 30% of people who have symptoms will actually consult a doctor. One bit of information i found to be interesting is that IBS has a higher prevalence rate in women and people who work in professional or managerial roles. IBS can really be found in any person at any age but research shows that most people will experience their first symptoms before the age of 35. That being said IBS can really happen at any age, but the peak ages for dealing with IBS is between 25 and 54 years. IBS is also found to have a genetic link. Anyone who has a biological relative with IBS is TWICE as high than those who have no family with the condition.

So what really causes this extremely prevalent disorder? Sadly even though we live in a time of research, the exact cause of IBS isn’t known. Researchers believe that a faulty communication between the brain and GI system could be a cause. In some cases the miscommunication can cause abnormal spasms or cramping of the intestines. Those spasms may increase or decrease the passage of stool causing constipation or diarrhea! People with IBS may have symptoms caused by:

  • Eating (even though no particular foods have been directly linked with IBS)
  • Stress &/or issues like anxiety or depression
  • Hormonal changes such as the menstrual cycle in women.
  • Medications (especially antibiotics)
  • Infection of the intestines like Salmonella or E. Coli
  • Genetics, (as noted above in the discussion of statistics) IBS is more likely to occur in people who have a family history of the condition.

Now that we know we aren’t alone in our struggle with IBS, and we know the potential causes, what are the symptoms to watch for?!?! Everyone will have different symptoms, that’s why knowing the symptoms of IBS is an important way to help determine which of the three types of the condition you may have. Everyone has stomachaches and trouble going to the bathroom from time to time. But for people who have IBS these symptoms can be disabling.

The following are general symptoms:

  • Abdominal pain
  • Bloating
  • Gas
  • Constipation (may alternate with diarrhea)
  • Diarrhea (may alternate with constipation)
  • Bowel movements that feel uncontrollably urgent, difficult to pass or incomplete!
  • Passing clear or white mucous with the stool.

I mentioned above that there are three types of IBS, while looking at the symptoms let’s also look at the types of IBS before diving into how to diagnose.

  1. IBS with constipation- People suffering with this kind of IBS will present with stomach pain & discomfort, bloating, bowel movements that are abnormally infrequent or delayed and may be lumpy or hard!
  2. IBS with diarrhea- People who have this type of IBS will likely complain of stomach pain & discomfort (just like the above type), an urgent need to move your bowels, very frequent bowel movements, loose &/or watery stools
  3. IBS with alternating constipation & diarrhea. This kind requires no real description. A person with this type of IBS will experience a combination of the symptoms noted above with the other two types of IBS.

Lets take a moment to look at how a person is diagnosed with this condition. In order for a doctor to properly diagnose IBS, there are certain criteria that a person must meet. A person must meet TWO of the THREE following criteria in order to be diagnosed.

  1. A bowel movement that relieves the stomachs and suffering.
  2. There is a change in how often you have bowel movements.
  3. The stool looks different.

The above standard diagnostic guidelines for IBS is called the Rome IV criteria. This criteria states that in order to be diagnosed with IBS a person must have the above stated symptoms for at least 1 day a week over the last three months, and that the symptoms must have started at least 6 months prior. If you start having symptoms and believe it could be IBS doctors encourage people to start keeping a symptom journal/diary. This is important because keeping a journal can not only help diagnose the condition, it can also be show patterns in symptoms. The journal may also show if there is a dietary link to the symptoms. The following are recommended topics to be included in a symptom journal!

  • Date and time symptom started and ended.
  • Description of symptoms (what symptoms are experienced during the current flare).
  • Where were you and what were you doing when the symptoms started.
  • Food eaten the hours leading up to the attack.
  • Amount of food eaten (using a 1-10 scale, with 1 being a very small amount and 10 being an excessive amount)
  • Any meds taken to help relieve symptoms.
  • Any and all suspected triggers.

There are also more definitive testing that can be done to diagnose the condition. Doctors can order stool studies, lab work and even X-rays and other imaging to help rule out other conditions, and decide if IBS is the issue.

  • Stool studies- ordered to check for and rule out infection or problems with the intestines ability to absorb nutrients.
  • Flexible Sigmoidoscopy- This imaging study is done to examine the lower part of the colon (the sigmoid colon) with a flexible, lighted tube.
  • Colonoscopy- The doctor uses a small, flexible lighted tube to examine the entire length of the colon.
  • X-ray or CT Scan- These tests are ordered so the dr can see images of the abdomen and pelvis to rule out potential causes of abdominal pain. The doctor can also order a Lower GI Series, which consists of filling the large intestine with an opaque liquid (known as barium) so they are able to see any potential problems on an X-ray

Once the diagnosis has been decided treatment is started. But what exactly is the treatment for IBS?? Well, treatment really focuses on relieving symptoms so that you can live as normal a life as possible. Symptoms for many can often be controlled by learning to manage stress, and making changes in diet and lifestyle. Common ideas for doing so:

  • Avoid foods that you have noted to trigger your symptoms.
  • Eat foods that are high in fiber.
  • Drink lots of water
  • Try to exercise regularly
  • Get recommended hours of sleep.

Your doctors may also suggest eliminating certain types of food as well. The foods that you might be asked to eliminate:

  • High-gas producing foods- If you experience gas or bloating you might try avoiding carbonated and alcoholic beverage, caffeine, raw fruit, cabbage, broccoli and cauliflower, to see if doing so will reduce symptoms.
  • Gluten- research has shown that some with IBS have reported improvements in diarrhea if they stop eating gluten (wheat, barley and rye) even if they don’t have celiacs disease.
  • FODMAPs- some people have found they are sensitive to certain carbs such as fructose, fructans, lactose, and some others known as FODMAPs. That stands for fermentable oligo-, di-, and monosaccharides and polyols. FODMAPs can be found in some grains, vegetables, fruits and dairy. IBS symptoms may ease up if a strict low-FODMAP diet and slowly introduce food one at a time, in order to determine which foods cause more issues.

Some people find it easier to see a dietician to help to make these dietary changes. Also, depending on symptoms a doctor may suggest some of the following medications.

  • Fiber supplements – these may help to control constipation.
  • Laxatives- these may be encouraged to help manage constipation if fiber supplements don’t help. Milk of Magnesia or Miralax might be prescribed.
  • Anti-diarrheal meds- A Doctor May suggest over-the-counter medications to help with diarrhea, such as Imodium. The doctor might also recommend meds like bile acid binders, like Prevalite, Colestid or Welchol.
  • Anticholinergic meds- These medications can help to relieve spasms of the bowels, and diarrhea.
  • Tricyclic antidepressants- These medications can benefit those with IBS in two ways. They can help relieve depression, as well as working to inhibit the activity of neurons that control the intestine to help reduce pain.
  • SSRI antidepressants- These medications work to treat anxiety and depression, as well as pain and constipation.
  • Pain Medications – can be used to ease severe pain or bloating

When people heard about IBS in the past most thought that is was just a coverall diagnosis for anyone with abdominal pain and bowel issues. That it was a diagnosis when the doctors don’t know what the real problem was. However, now we know that IBS is a real condition that causes real issues for many many people. And that it can truly be impacted by stress and anxiety! Over the last decade diagnosis and treatment options for those with IBS has greatly improved. Now people with the condition no longer have to suffer quietly. In years past it was almost considered taboo to speak openly about issues you might be having with your bowels simply because many felt like it was a topic that shouldn’t be discussed. Now there are all kinds of support groups and Facebook groups where people can go an openly discuss these issues. People no longer have to suffer quietly and feel alone. As discussed above we now know there are many potential causes for IBS, since that discovery has been made treatment options are much better. I know when I was diagnosed 15 plus years ago I was told that it was was NOT a condition that is impacted by diet or stress level. Now that we know that this is not the case, those of us who suffer know how to better treat the symptoms and make life changes. Like any condition we are only going to continue to learn more about the causes, the diagnosis and treatment through research. We can hope that one day we will be talking prevention and not just treatment.

With Love,

Amber ❤️

Resources:

https://www.mayoclinic.org/diseases-conditions/irritable-bowel-syndrome/diagnosis-treatment/drc-20360064

https://www.webmd.com/ibs/default.htm