Chances are high that if you have a friend or family member who lives with a chronic illness, or was recently diagnosed, that you don’t really know what you can do to help. This is not meant to be a dig towards you by any means. But most able-bodied people struggle because they don’t really know what to say or do. They feel this way because they can’t really relate to what we are feeling. They can’t relate to the chronic pain, or life altering fatigue. In fact, they often wonder if there is actually anything that they could say or do that would make any difference. They fear hurting their friend or family member so they pull away. This is not deliberate, but it is a reflex. So this is an effort to share some tips and ideas to help prevent that and help friends, family, and those with the chronic illness.
Social Media…..We always hear about the negatives viewpoints and aspects of each platform. Like the fact that social media is full of highlight reels rather than what’s actually real. We only get to see what those influencer types choose to show us, which is usually only the highlights. Or the fact that the internet is full of what we will call “keyboard warriors,” who spew all kinds of nasty hatred into the comment section of any social media platform. They say things that they would NEVER say to someone’s face all because they can hide behind their screens or keyboards without any real consequences. While those are well known facts about social media, what isn’t well known, or often spoken about, is the fact that social media is a HUGE blessing to those in the chronic illness community. I’ll wait while you pick your jaw up off the floor. Did I really just say that social media is a blessing????
I realized sometime last year that I have lost myself over the last few years. I am not the person I was seven years ago before I got sick. It didn’t happen all at once, but slowly somehow I disappeared. I no longer do the things that I used to love. And I would rather stay at home any day rather that going out.
It is so easy to get stuck focusing on the bad things in life and focus solely on how things haven’t turned out the way you had in mind. It’s easy to list off the things you have missed out on or didn’t get to do because you…