Hellooooo……. You guys! It has been a year since I was here last. In my head I would have sworn I put up a […]
Illness
Tips For Dealing With 2020s Social Isolation In 2021
2020….. wow you were quite the year. You brought Covid, massive wildfires, and murder hornets. You brought light to all kinds of social injustices (which […]
Learning To Deal With Life Changes
IAs much as you plan and hold out hope that your life will be “perfect,” we all know that won’t be the case. Life is […]
A Journey With COVID
You wake up one morning coughing like your lungs want to expel themselves from your body. You can’t breathe and basically you are hoping that […]
Returning to normal; challenges for the chronically ill
2020 came in like a wrecking ball for many of us that is safe to say. At the beginning of every year, we are all […]
What I Wish I knew….
Living with any chronic illness is challenging. Lupus is no different. In life there are always things that you don’t know. Things that you only […]
Focus On The Fight | Hereditary Lymphedema
Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.
This week we meet Jordyn, and we will highlight: Hereditary Lymphedema aka Primary Lymphedema.
Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!
I love to cuddle my service dog, read books, blog, crochet, share my story online, and talk to my friends. I also especially love to garden when it’s summertime.
What Chronic Illness (es) have you been diagnosed with? Which one will you focus on today?
Hereditary Lymphedema Erythromelalgia Ehlers Danlos Syndrome Type 3 Chronic Fatigue Postural Syndrome Orthostatic Tachycardia Syndrome Polycystic Ovarian Syndrome Daily Migraines Asthma MTHFR mutation. Today I will be focusing on my Hereditary Lymphedema.
Dear Medical Provider | A Letter The Medical Community
Dear Medical Professional,
I know, it’s so easy to see a diagnosis or a medication in a chart and form judgment on someone before you ever meet them. I’ve been there, I’ve done that. I would be lying if I said I hadn’t. That being said now that I am on the other side of the bed I ask that you hold that judgement until you meet me. We aren’t all alike, just like you aren’t like your sibling or your cousin with the same last name who no one speaks of. All chronic illness patients are different. We may have the same diagnosis and take the same medications but that’s often where the similarities stop.
The NEW Normal | Redefing Life After Diagnosis
When The Old Me is Lost, How Do I Find a New Me?
Patient Physician Relationship | How To Handle Bad Care
Lately I’ve noticed a disturbing trend, healthcare providers that don’t take the time to actually listen to their patients. Or providers that act more like bullies than providers.
