Living with any chronic illness is challenging. Lupus is no different. In life there are always things that you don’t know. Things that you only […]
Temperatures are starting to drop, leaves are changing and pumpkin spice is everywhere you look. For most fall is the best time of year, a time that brings football, hoodies and Halloween. But for those with chronic illness or who are immunocompromised fall means something completely different. Fall means that the cold and flu season is upon us and we have to be more vigilant than ever to make sure we protect ourselves from illness. It almost seems unfair that we have to say goodbye to the wonderful summer temperatures and longer days, and also welcome the cooler temperatures that often cause pain and bring illness.
As I near my mid thirties and have yet to meet my lifetime mate, dating is something that is on my mind more and more. Most of my friends have coupled up and are starting their families and I am growing tired of always being the odd man out or the only single one. But dating is just such a daunting task. In the world of the normal able-bodied person dating can be overwhelming and frustrating, so many games being played, including guessing what the other person is thinking or feeling.
It’s been months…….maybe years. You’ve been suffering alone because no one understands what’s been going on. The doctors have been shuffling you back and forth because they don’t know what to do with you. You’ve heard “Well…..maybe it could be this. Or it could be that!” However they are really just grasping at straws and making guesses because no one really has any concrete idea. Until you finally come in contact with that ONE doctor who follows that ONE path and found you a DIAGNOSIS! Which feels like you won the lottery for a bit. But now what??
Living with a chronic illness is hard and comes with many challenges. Including challenges most never thought they’d face, especially at such a young age. For instance, when I graduated from nursing school I never dreamed that I would only be able to work for ten years before I had to leave my job to care for myself. That being said when you think of chronic illness you wouldn’t automatically think of the fact that many who suffer from a chronic illness will have to leave the workforce long before they wanted or planned to. But it’s true, sadly, many end up having to leave their dream job or the career they loved to stay home and take care of themselves. Which in and of itself brings up challenges. The biggest being that most around us don’t understand us or our decisions to leave the workforce. Or what that looks like as far as what we can and cannot do now that we are no longer working.
Social Media…..We always hear about the negatives viewpoints and aspects of each platform. Like the fact that social media is full of highlight reels rather than what’s actually real. We only get to see what those influencer types choose to show us, which is usually only the highlights. Or the fact that the internet is full of what we will call “keyboard warriors,” who spew all kinds of nasty hatred into the comment section of any social media platform. They say things that they would NEVER say to someone’s face all because they can hide behind their screens or keyboards without any real consequences. While those are well known facts about social media, what isn’t well known, or often spoken about, is the fact that social media is a HUGE blessing to those in the chronic illness community. I’ll wait while you pick your jaw up off the floor. Did I really just say that social media is a blessing????
Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.
This week we meet Vickie, and we will highlight: Psoriatic Arthritis (PA)
Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!
I am married with two grown sons and a five year old grandson. My favorite hobbies are reading and fishing.
What Chronic Illness (en) have you been diagnosed with? Which one will you focus on today?
I have psoriasis and psoriatic arthritis