Spoonies

Dealing with Social Isolation

When you read the words social isolation what is the first thing you think of?  Is it Tom Hanks being stuck on a deserted island and resorting to talking a volleyball to not go nuts?  Is it those poor old people who live by themselves and have no friends or family to ever come see them? According to free dictionary.com – social isolation is the process of separating, or the state of being alone.  So this could be taken inRead More

Living vs Surviving 

You know the question….. We’ve all asked it, and all thought carefully about how to answer. The question is nothing life altering to most and seems simple enough. But to many the answer is FAR from simple. Now you are probably wondering what question I might be speaking of. Well….. the common probably the most common and generic question asked, “How are you?”     To most that’s not a big question and gets a simple answer of “Okay,” orRead More

Where Did All The Money Go????Bills Pills Bills Pills…..

By Amy Nora It is the never-ending cycle of what many of those with Lupus and other Chronic health conditions struggle with. The financial struggles that people with SLE face can be a challenge on many levels. According to the Lupus Foundation of America, the average lupus patient spends approximately $12,000 annually on treatments; however, many treatments cost several thousand dollars a month or every few months. There is also the problem of loss of income due to the inabilityRead More

Lupus Paychosis/ Neuropsychiatric Lupus 

Lupus psychosis or  Neuropsychiatric Lupus sounds pretty scary right? Well it is. It may also sound pretty far fetched…. That it is not!!!!It is a truly scary condition that someone with lupus can deal with, but others who don’t have lupus might have trouble understanding.  So what exactly IS LUPUS PSYCHOSIS??? Or Neuropsychiatric Lupus? The American College of Rheumatology (ACR) has identified “19 different ways that lupus can affect nervous system, including the brain. This complication of lupus is knownRead More

What is Sjogrens?

Sjogrens…… How many of you know what that word means or is? According to Mayo Clinic, Sjogren’s (SHOW-grins) syndrome is a disorder of the immune system which is identified the two most common symptoms: dry eyes and a dry mouth. Sjogren’s syndrome is often found in those with other immune system disorders, such as rheumatoid arthritis and lupus. In this blog post we will look at what Sjogrens is, how many are affected, the symptoms and how it is treated.Read More

Cyclic Vomiting Syndrome 

When you hear CVS what do you think? If you are like most you probably think of the big box pharmacy. And you wouldn’t be alone in this. That’s what most would think. However, if you have CVS or know someone who suffers from it, that is not the first thing that comes to mind. You would probably think of Cyclic Vomiting Syndrome. What is that you ask!? We will discuss that in today’s post. We will look at whatRead More

Multiple Sclerosis Awareness Month

March 18, 2017 INFORMATIONAL POSTS, Spoonies

March is Multiple Sclerosis Awareness month.  So I thought I would do my part and bring awareness to another awful autoimmune disease. I decided I wanted to cover the following topics in the blog.   What is MS? Who gets it? What are the symptoms? How is it treated? And what can we do to raise awareness? So let’s jump right in.  Per the Mayo Clinic no one is really sure of the cause of MS. But it is consideredRead More

Have You Laughed Lately?

Maintaining a sense of humor when you have a chronic illness is vital.

PRODUCT REVIEW 

February 19, 2017 "Me" time, Product Reviews, Spoonies

So last week I received a TON of product from Tracy Wood and the Spoonique Boutique on Etsy and Instagram. She sent me everything from bath bombs to lip gloss. It will take me a LONG Time to use everything but I thought I would give a quick review of what I have used so far.  This stuff is totally amazing. Put it on your lips and rub it in for a few seconds and then wipe it off andRead More

Alternative Therapy to Treat Fibromyalgia 

Fibromyalgia……..Is defined as a widespread musculoskeletal pain disorder accompanied by fatigue, sleep disturbances and memory issues. At this time there is no cure and no definite treatment. The standard treatments right now are pain killers, antidepressants and anti-seizure medications. These help reduce the symptoms but don’t really treat the condition as a whole. So many people will turn to alternative therapies to help control the symptoms of their fibromyalgia! Let’s take a look at some of the most popular alternativeRead More

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